upworthy

Heather Libby

True
Cigna 2017

The first thing you notice when you see twin sisters Carrie and Erica together are their smiles.

They’re big and welcoming, crinkling the corners of their eyes in exactly the same way.

Yet there's one big difference between Carrie and Erica. Carrie has the BRCA gene mutation. Erica doesn’t.


If you don’t know — don't feel bad because lots of people don't — a mutated BRCA1 or BRCA2 gene is one of the most common indicators that a person will get breast or ovarian cancer in their lifetime.

Watch Carrie and Erica's inspiring story below:

Her twin sister wouldn't be here today if it weren't for the preventive steps she took.

Posted by Upworthy on Thursday, June 29, 2017

"We have had a substantial family history of breast and ovarian cancers," Carrie says.  And when the sisters found out that their mom had the BRCA gene, they both decided to get tested for it too.

"I was positive and she was negative," says Carrie.

For Erica, relief at her diagnosis was short-lived. "I was also sad and nervous and upset that the two women closest to me, my mom and my sister, both had it."

Rather than worry, Carrie immediately went to work.

Together with her care providers, she arranged for mammograms and MRIs to test for breast cancer every six months, along with blood tests for ovarian cancer.

For a while, all the tests came back fine. Then, one routine MRI revealed some abnormal cells. Carrie had a biopsy to be sure, but the results were conclusive: cancer cells.

Like hundreds of thousands of other women, Carrie began cancer treatment — and she did it with her sister at her side.

"I started chemotherapy," she says. "Lost my hair, lost my appetite, lost a good sense of myself. But, you can come out the other side."

Erica and Carrie. Image via Cigna.

"Without preventive care, I probably would not be here today," she says, her voice breaking. "That's the truth."

Along with knowing her genetics, early detection helped save Carrie’s life. Now she’s not taking anything for granted.

"This could happen to anybody, no matter what age you are," she says. "I would highly suggest people go in to have regular doctor visits and to know your numbers so that you can take control of your health and your life."

Keeping an eye on your health numbers — blood pressure, blood sugar, BMI and cholesterol — can help you spot potential health problems early.

Erica agrees. "Going to the doctor is not the most comfortable thing and mammograms are not that comfortable, but I think Carrie has shown people what’s good about going to the doctor and finding out early."

As Carrie thinks about her future, she’s excited about what it holds. "I'm looking forward to having a family one day, traveling the world, and being more of a participant in this crazy, awesome life."

More

There are blind doctors, lawyers, and athletes. It's time more workplaces caught up.

If the first thing you think of when you hear 'blind person' is all the things they can't do, this campaign is for you.

True
Perkins School for the Blind

There are more than 23 million people who are blind or have experienced vision loss in the United States and Canada.

They are doctors, lawyers, and professional athletes. They're actors, writers, and daredevils. They love skiing, dancing, and watching movies.

Check out this moving video about ways that blind or visually-impaired people are challenging misconceptions:


‌‌

There's also an audio-described version of the video here.

While being blind or vision-impaired has little bearing on people's ability to do many jobs, it does affect their ability to get a job in the first place.

Fred LeBlanc knows this all too well.

LeBlanc is the star of a PSA created by the Canadian National Institute for the Blind (CNIB). After 29 years working as a firefighter, he began to lose his sight in 2011. A diagnosis of legal blindness followed soon after. In an interview with the CNIB, he talked about how his diagnosis made him doubt his abilities to remain in the workforce:

"I questioned myself. If I struggled with everyday tasks, how was I going to lead a fulfilling career?”

With the support of the CNIB and other blind workers, LeBlanc found his confidence. He decided to run for the position of 13th District vice president with the International Association of Fire Fighters, a job he still holds.

"I thought 'why can’t I do what I set out to do?' I had to tell myself 'don’t be silly, this is not your fault, there’s nothing to be ashamed of,'" he told CNIB.

‌There's plenty of room at the table for blind workers — as long as we give them the chance. Image via iStock. ‌

In Canada, about 60% of people of working age are employed. That number drops to just 32% for the visually-impaired. Similarly, according to the latest data from the U.S. Bureau of Labour Statistics, only about a third of working-age Americans with visual impairments or blindness were employed in September 2016.

Diane Bergeron, the executive director of CNIB, says that's not for lack of trying. In an interview with the Toronto Star last month, she relayed her frustrations, saying, "We go out, we get an education and then we come out of education and when we want a job there’s no job to be had."

According to the CNIB, creating a workplace that is inclusive and welcoming for blind and sighted workers isn't as daunting as it might seem.

‌A man reads on his tablet. Substituting printed correspondence for digital is one easy way to make a workplace more accommodating for people who are visually-impaired. Image via iStock. ‌

Jim Lee, Chief of Staff to the General President, International Association of Fire Fighters, is Fred LeBlanc's boss at the IAFF. For him, working with Fred is a mind-opening experience.

Prior to working with LeBlanc, Lee had no experience interacting with someone who is blind or partially sighted. Lee quickly saw firsthand that LeBlanc's abilities didn't change, even though his vision did. "Unless he tells you, you wouldn't know that Fred has vision loss," Lee told the CNIB. "His abilities didn't change at all."

To accommodate his colleague's vision loss, Lee and his team made minor adjustments to their workplace. Rather than printing hard copies, they focus on email correspondence. Documents use an off-white background to provide easier visual contrast.

Realizing how little things needed to change helped Lee understand that vision impairment doesn't mean workers needed to exit or stay out of the workforce.

"People with visual impairments have a lot to offer," said LeBlanc. "They just need the opportunity to prove that. Employers have to give them a chance to come in and show what they can do. A lot of employers would be amazed."

It would be easy to tell a story about blindness that focuses on depressing statistics around working or employment. After all, there are a lot.

‌A doctor and a patient look at a computer screen. A more inclusive workplace benefits everyone. Image via iStock. ‌

But the real power is in flipping that story to one of empowerment. Whether they choose to become athletes, artists, or professionals, individuals who are blind can and do lead rich, fulfilling lives, like anyone else. It's time to elevate the work experiences of people like Fred LeBlanc and remind everyone that blind workers can thrive in whatever career they desire — when employers give them the chance.

True
Perkins School for the Blind

There are few greater thrills than meeting someone amazing for the first time. So much happens in those first few moments.

Maybe it's their eyes and the way they sparkle in the light. Maybe it's their smile and how it makes the corners of their eyes crinkle in just the right way. Maybe. All you know is that with just one look, something is a little bit different. Just as Ed Sheeran says, everything has changed.

‌A woman looks into a man's eyes. Image via iStock.‌


For people who see, so much of what is felt in those first few moments comes from the way a person looks. But what if we couldn't see them? Would we still feel the same way about them after a first meeting?

It's a real question and one that people who are blind or have low vision get asked a lot. To get a better understanding, we asked a few individuals what they wish sighted people knew about dating them.

1. They may not be able to see you, but first impressions still matter.

"The concept of a first impression in a meeting for us is not quite similar to [what] you are familiar with," says Florian Beijers, a 24-year-old computer science student from the Netherlands. "You can see the style of their clothes, the way they look ... [but] we don’t get these details. There is, of course, someone’s smell, someone’s voice, but they don’t always tell the same story as what you would be seeing ... it takes us a bit longer to actually form an opinion on someone."

Still, if you didn’t make an effort to dress up for the date, if you are uncomfortable, or even if you're uninterested in the date, it is going to show.

"I don’t have to see their facial reactions to tell if they want to get out of there, if they are bored," says Tanja Milojevic, 27, who works in the library at Perkins School for the Blind. "I am also interested in how they look to a point ... [so] when I meet somebody, I give them a hug. The hug shows me what they look like in a sense, and that helps form my impression of them," she adds.

‌Two women hug at a coffee shop. Image via iStock.‌

2. Scent is important.

There's a lot of unseen stuff that folks notice that shapes their attraction to someone new. Smells — the ones we cultivate or the ones we don't even realize we have — are a big part of that.

"Body odor is a big one," says Milojevic. "If they smell like sweat and beer and they didn’t brush their teeth — I am not going to be interested."

3. Sound is too.

Like scent, the sound of a potential partner can go a long way to affecting how attracted a person will be to them. It's more than the timbre of a voice; it's everything from the sound of their breathing to their chewing to what their shoes sound like when they walk. Word choices and volume are key, too.

"Their voice is important to me," Milojevic says. "I pay attention to their conversation skills, but also what their voice sounds like."

‌A couple holds hands over a candlelit dinner. Image via iStock.‌

She continues, noting, "You can definitely tell when you meet somebody whether they put a lot of emotion and emphasis into their voice. I personally like that because I can learn a lot about them as a person [and] I know how they are reacting ... if they put a lot more passion into their voice, it’s easier to read them."

4. Spontaneity is fun, but dating is often easier for blind people when they can plan ahead.

Until Elon Musk and Google replace all cars with perfectly self-driving ones, getting around wide distances will continue to be a bit of a challenge for blind and low vision folks. Many people, blind and sighted, rely on public transportation and the schedules that come with it. Having the time to plan travel in advance is important.

5. Don't write off activities like going to movies or the theater. There are apps and tools for that.

‌A woman leans on her date's shoulder in the movie theater. Image via iStock.‌

Going to the movies or a play are time-honored dating activities. Those don't have to be off-limits because you're dating someone with a visual impairment. Lots of movie theaters are equipped with audio descriptions so that moviegoers can fill in the gaps for scenes without dialogue or narration.

And if you aren’t sure if it’s something a blind or low-vision friend would enjoy — just ask. "Better to not assume, better just to ask," Milojevic says.

6. Open communication is key to any relationship — and asking questions is OK.

Every relationship will eventually fall apart if the people in it don't trust each other enough to talk honestly. So talking and asking questions on a date is one of the best ways to get over any awkwardness.

"If you are unsure about something, just ask — we don’t bite," Beijers says. "People start walking on eggshells when they are around someone with a disability; that is something that you shouldn’t do."

"Asking questions is actually a wonderful way to get conversations going and putting yourself at ease," notes Milojevic. "We don’t get offended easily, for the most part, and sometimes just asking 'Is there something that I should avoid bringing up that might offend you' is helpful and will put them at ease because usually [we] will say no."

‌A man and a woman talk over coffee. Image via iStock.‌

Beijers adds, "When you start a relationship with someone that can see and you cannot yourself, at some point, these things are going to come to light anyway, so you might as well start out knowing what you are comfortable talking about, what you feel comfortable discussing, and what you don’t feel comfortable talking about — this is going to help you grow closer."

Beijers has been with his girlfriend, who is sighted, for more than two years. They met at a friend’s party, and he said they grew close because they had open communication from the beginning. "[If] both parties try not to be awkward with each other, I think you come a lot further and have this chemistry that will grow a lot faster," he says.

7. Don't diminish the relationship between a blind person and their guide dog.

‌A seeing-eye dog. Image via iStock.‌

For a relationship between a person and their service animal to work, they both need to trust each other implicitly. Potential partners need to be comfortable with always having a third (four-legged) wheel around and not distracting the service animal from their important daily duties.

"If they don’t like dogs or they are allergic, I don’t pursue it because it is not going to work out," says Milojevic.

8. They don't need a savior or a servant.

Having a partner who is helpful can be wonderful but not when it comes at the expense of being self-reliant.

In an interview with Tab's View, blind dater Abby described her experiences with an ex-boyfriend who used her condition as an excuse to do everything for her.

"I would ask him to not pick me up  somewhere, because I have a guide dog; I wanted to walk on the pretty days," she said. "He would pick me up anyway, and it just drove me crazy after a while, I would tell him, 'Hey! You can just meet me at home,' or something like that. He sometimes would be okay with it, but it got to a point where he would use my visual impairment to his advantage."

Milojevic also had a particularly bad — and creepy — date with a man who enjoying "helping" just a little too much.

"The person was very interested in the whole process of helping me out, even if I didn’t really need the help, and they liked the fact that traveling around an unfamiliar area, I was depending on them," she recalls. "It was more like they liked having the whole 'dependent/co-dependent thing' going on at that moment, and I don’t know. I didn’t like that. It kind of freaked me out."

"I am capable of doing things myself," she explains. "I don’t want the person to feel like they have to do everything. If I am in a relationship, I want to feel like I’m equal."

9. Blind people date using a lot of the same tools and apps you do — though nothing beats meeting in person.

There are a few specialized dating apps and websites for people who are blind or have low vision, but most don’t offer the same wide pool of potential dates. As a result, more and more people use the same dating websites and apps that everyone uses — or at least the ones that are accessible to screen-readers.

Milojevic says she used to have an online dating profile but that it isn’t her favorite way to meet people. "I had a few experiences on there where it just didn’t go anywhere," she says.

Also, not all parts of dating websites were accessible. "There was a lot on there, a lot of advertisements. And it would freeze up my page, so I got frustrated with it." She prefers meeting people at events or on websites like Meetup, where she can get to know someone face-to-face.

10. Relationships matter because we're people and we matter.

‌A couple walks holding hands by the riverbank. Image via iStock.‌

It's a fact: Not everyone one in the world will seem attractive to everyone else. But all of us, regardless of who we are and what we like, deserve the chance to find love and happiness. Whether you are sighted, blind, or in between, remembering our basic shared humanity is essential.

There are few greater thrills than meeting someone amazing for the first time. So much happens in those first few moments.

Maybe it's their eyes and the way they sparkle in the light. Maybe it's their smile and how it makes the corners of their eyes crinkle in just the right way. Maybe. All you know is that with just one look, something is a little bit different. Just as Ed Sheeran says, everything has changed.

‌A woman looks into a man's eyes. Image via iStock.‌

For people who see, so much of what is felt in those first few moments comes from the way a person looks. But what if we couldn't see them? Would we still feel the same way about them after a first meeting?

It's a real question and one that people who are blind or have low vision get asked a lot. To get a better understanding, we asked a few individuals what they wish sighted people knew about dating them.

1. They may not be able to see you, but first impressions still matter.

"The concept of a first impression in a meeting for us is not quite similar to [what] you are familiar with," says Florian Beijers, a 24-year-old computer science student from the Netherlands. "You can see the style of their clothes, the way they look ... [but] we don’t get these details. There is, of course, someone’s smell, someone’s voice, but they don’t always tell the same story as what you would be seeing ... it takes us a bit longer to actually form an opinion on someone."

Still, if you didn’t make an effort to dress up for the date, if you are uncomfortable, or even if you're uninterested in the date, it is going to show.

"I don’t have to see their facial reactions to tell if they want to get out of there, if they are bored," says Tanja Milojevic, 27, who works in the library at Perkins School for the Blind. "I am also interested in how they look to a point ... [so] when I meet somebody, I give them a hug. The hug shows me what they look like in a sense, and that helps form my impression of them," she adds.

‌Two women hug at a coffee shop. Image via iStock.‌

2. Scent is important.

There's a lot of unseen stuff that folks notice that shapes their attraction to someone new. Smells — the ones we cultivate or the ones we don't even realize we have — are a big part of that.

"Body odor is a big one," says Milojevic. "If they smell like sweat and beer and they didn’t brush their teeth — I am not going to be interested."

3. Sound is too.

Like scent, the sound of a potential partner can go a long way to affecting how attracted a person will be to them. It's more than the timbre of a voice; it's everything from the sound of their breathing to their chewing to what their shoes sound like when they walk. Word choices and volume are key, too.

"Their voice is important to me," Milojevic says. "I pay attention to their conversation skills, but also what their voice sounds like."

‌A couple holds hands over a candlelit dinner. Image via iStock.‌

She continues, noting, "You can definitely tell when you meet somebody whether they put a lot of emotion and emphasis into their voice. I personally like that because I can learn a lot about them as a person [and] I know how they are reacting ... if they put a lot more passion into their voice, it’s easier to read them."

4. Spontaneity is fun, but dating is often easier for blind people when they can plan ahead.

Until Elon Musk and Google replace all cars with perfectly self-driving ones, getting around wide distances will continue to be a bit of a challenge for blind and low vision folks. Many people, blind and sighted, rely on public transportation and the schedules that come with it. Having the time to plan travel in advance is important.

5. Don't write off activities like going to movies or the theater. There are apps and tools for that.

‌A woman leans on her date's shoulder in the movie theater. Image via iStock.‌

Going to the movies or a play are time-honored dating activities. Those don't have to be off-limits because you're dating someone with a visual impairment. Lots of movie theaters are equipped with audio descriptions so that moviegoers can fill in the gaps for scenes without dialogue or narration.

And if you aren’t sure if it’s something a blind or low-vision friend would enjoy — just ask. "Better to not assume, better just to ask," Milojevic says.

6. Open communication is key to any relationship — and asking questions is OK.

Every relationship will eventually fall apart if the people in it don't trust each other enough to talk honestly. So talking and asking questions on a date is one of the best ways to get over any awkwardness.

"If you are unsure about something, just ask — we don’t bite," Beijers says. "People start walking on eggshells when they are around someone with a disability; that is something that you shouldn’t do."

"Asking questions is actually a wonderful way to get conversations going and putting yourself at ease," notes Milojevic. "We don’t get offended easily, for the most part, and sometimes just asking 'Is there something that I should avoid bringing up that might offend you' is helpful and will put them at ease because usually [we] will say no."

‌A man and a woman talk over coffee. Image via iStock.‌

Beijers adds, "When you start a relationship with someone that can see and you cannot yourself, at some point, these things are going to come to light anyway, so you might as well start out knowing what you are comfortable talking about, what you feel comfortable discussing, and what you don’t feel comfortable talking about — this is going to help you grow closer."

Beijers has been with his girlfriend, who is sighted, for more than two years. They met at a friend’s party, and he said they grew close because they had open communication from the beginning. "[If] both parties try not to be awkward with each other, I think you come a lot further and have this chemistry that will grow a lot faster," he says.

7. Don't diminish the relationship between a blind person and their guide dog.

‌A seeing-eye dog. Image via iStock.‌

For a relationship between a person and their service animal to work, they both need to trust each other implicitly. Potential partners need to be comfortable with always having a third (four-legged) wheel around and not distracting the service animal from their important daily duties.

"If they don’t like dogs or they are allergic, I don’t pursue it because it is not going to work out," says Milojevic.

8. They don't need a savior or a servant.

Having a partner who is helpful can be wonderful but not when it comes at the expense of being self-reliant.

In an interview with Tab's View, blind dater Abby described her experiences with an ex-boyfriend who used her condition as an excuse to do everything for her.

"I would ask him to not pick me up  somewhere, because I have a guide dog; I wanted to walk on the pretty days," she said. "He would pick me up anyway, and it just drove me crazy after a while, I would tell him, 'Hey! You can just meet me at home,' or something like that. He sometimes would be okay with it, but it got to a point where he would use my visual impairment to his advantage."

Milojevic also had a particularly bad — and creepy — date with a man who enjoying "helping" just a little too much.

"The person was very interested in the whole process of helping me out, even if I didn’t really need the help, and they liked the fact that traveling around an unfamiliar area, I was depending on them," she recalls. "It was more like they liked having the whole 'dependent/co-dependent thing' going on at that moment, and I don’t know. I didn’t like that. It kind of freaked me out."

"I am capable of doing things myself," she explains. "I don’t want the person to feel like they have to do everything. If I am in a relationship, I want to feel like I’m equal."

9. Blind people date using a lot of the same tools and apps you do — though nothing beats meeting in person.

There are a few specialized dating apps and websites for people who are blind or have low vision, but most don’t offer the same wide pool of potential dates. As a result, more and more people use the same dating websites and apps that everyone uses — or at least the ones that are accessible to screen-readers.

Milojevic says she used to have an online dating profile but that it isn’t her favorite way to meet people. "I had a few experiences on there where it just didn’t go anywhere," she says.

Also, not all parts of dating websites were accessible. "There was a lot on there, a lot of advertisements. And it would freeze up my page, so I got frustrated with it." She prefers meeting people at events or on websites like Meetup, where she can get to know someone face-to-face.

10. Relationships matter because we're people and we matter.

‌A couple walks holding hands by the riverbank. Image via iStock.‌

It's a fact: Not everyone one in the world will seem attractive to everyone else. But all of us, regardless of who we are and what we like, deserve the chance to find love and happiness. Whether you are sighted, blind, or in between, remembering our basic shared humanity is essential.

More

Tommy Edison watches movies for a living. He's never actually seen one.

If you're only watching movies, you might be missing out.

True
Perkins School for the Blind

Tommy Edison was born blind. That didn't stop him from falling in love with movies.

If your first reaction upon reading that was to wonder how a blind person watches movies, Edison understands. It's a question he's answered a lot in his job as the Blind Film Critic on YouTube.

"I'm always asked how I can enjoy films without being able to see them," he said. "But for me, there's so much more to the experience — there's story, there's dialogue, there's music and sound. It's a lot more than what you watch on the screen."


For blind movie lovers like Edison, knowing that there are actors and action on the big screen is only a small part of experiencing cinema.

‌Tommy Edison, the Blind Film Critic. Image via Tommy Edison, used with permission.‌

"For me, the biggest part of a film is the story," he said. "Movies like 'Goodfellas' or 'Clerks' don't even need the visuals — their storytelling is so strong and the performances are so skilled. As soon as those movies started, I was right in the story."

Even if a film doesn't have amazing performances, it can make up for it with an excellent soundscape. "There was an incredible movie called 'The Grey,' starring Liam Neeson, a few years back," said Edison. "Most of the action took place outside, and the sound editors took advantage of the surround sound in the theater to make it feel like we were right there with them. I could hear the rain all around me — so much that I wanted to wipe it off my head, it felt so real."

At the moment, a lot of big-budget movies revolve around action sequences without dialogue — a challenging situation for blind moviegoers. That's when audio descriptions are helpful.

‌A woman listens with headphone to a movie playing on her laptop. For blind movie watchers, hearing the action is just as good as seeing it. Image via iStock.‌

Like closed-captioning for the hearing-impaired, audio commentary helps vision-impaired or blind people follow along with TV and movie action during scenes with limited dialogue.

According to the American Council of the Blind, three American theater chains — AMC, Cinemark, and Regal — offer audio descriptions on all of their screens. Blind or vision-impaired moviegoers can go to the theater and wear a set of headphones that will play a narration track describing the film's key visual elements like costumes, sets, and other moments only sighted people would experience. Best of all, the track only runs during pauses in lines of spoken dialogue, ensuring non-sighted moviegoers don't miss anything.  

For Edison, an audio description track changed his understanding of one of the most famous movies of the '90s. "I tried watching 'The Matrix' a few times without audio descriptions. I couldn't make it through more than about 20 or 30 minutes of it," said Edison. "The descriptions changed that; they helped me understand what it was about, and how cool of a film it was."

While Edison is appreciative of technological advancements like audio descriptions, he'd rather they weren't necessary.

If he had his way, Hollywood would simply get better at telling stories, rather than showing them.

‌This empty green-screen set could become an entire scene in a superhero popcorn flick. For blind moviegoers like Edison, that's a big problem. Image via iStock.‌

"The one genre that doesn’t really work for me as a blind audience member are the superhero movies," he said, conspiratorially. "'Thor,' 'X-Men,' 'Superman' — it all sort of seems to be eye candy. They have all these incredible performers, and they all know how to act — studios need to give them something to work with! At the very least, they need to talk to each other more during fight scenes, not just grunt and roar."

Movies and TV shows are part of our shared cultural fabric — whether we're watching them for the action on the screen or listening to them for the stories they tell.

While, as Edison said, "there's nobody audio-describing our lives," anyone can appreciate the moviegoing experience of blind people on their own. So next time you settle in for a night on the couch or head to the theater for a break (and some $12 popcorn), maybe try closing your eyes and listening to the film instead. You might end up seeing it in a whole new way.

Tommy Edison was born blind. That didn't stop him from falling in love with movies.

If your first reaction upon reading that was to wonder how a blind person watches movies, Edison understands. It's a question he's answered a lot in his job as the Blind Film Critic on YouTube.

"I'm always asked how I can enjoy films without being able to see them," he said. "But for me, there's so much more to the experience — there's story, there's dialogue, there's music and sound. It's a lot more than what you watch on the screen."

For blind movie lovers like Edison, knowing that there are actors and action on the big screen is only a small part of experiencing cinema.

‌Tommy Edison, the Blind Film Critic. Image via Tommy Edison, used with permission.‌

"For me, the biggest part of a film is the story," he said. "Movies like 'Goodfellas' or 'Clerks' don't even need the visuals — their storytelling is so strong and the performances are so skilled. As soon as those movies started, I was right in the story."

Even if a film doesn't have amazing performances, it can make up for it with an excellent soundscape. "There was an incredible movie called 'The Grey,' starring Liam Neeson, a few years back," said Edison. "Most of the action took place outside, and the sound editors took advantage of the surround sound in the theater to make it feel like we were right there with them. I could hear the rain all around me — so much that I wanted to wipe it off my head, it felt so real."

At the moment, a lot of big-budget movies revolve around action sequences without dialogue — a challenging situation for blind moviegoers. That's when audio descriptions are helpful.

‌A woman listens with headphone to a movie playing on her laptop. For blind movie watchers, hearing the action is just as good as seeing it. Image via iStock.‌

Like closed-captioning for the hearing-impaired, audio commentary helps vision-impaired or blind people follow along with TV and movie action during scenes with limited dialogue.

According to the American Council of the Blind, three American theater chains — AMC, Cinemark, and Regal — offer audio descriptions on all of their screens. Blind or vision-impaired moviegoers can go to the theater and wear a set of headphones that will play a narration track describing the film's key visual elements like costumes, sets, and other moments only sighted people would experience. Best of all, the track only runs during pauses in lines of spoken dialogue, ensuring non-sighted moviegoers don't miss anything.  

For Edison, an audio description track changed his understanding of one of the most famous movies of the '90s. "I tried watching 'The Matrix' a few times without audio descriptions. I couldn't make it through more than about 20 or 30 minutes of it," said Edison. "The descriptions changed that; they helped me understand what it was about, and how cool of a film it was."

While Edison is appreciative of technological advancements like audio descriptions, he'd rather they weren't necessary.

If he had his way, Hollywood would simply get better at telling stories, rather than showing them.

‌This empty green-screen set could become an entire scene in a superhero popcorn flick. For blind moviegoers like Edison, that's a big problem. Image via iStock.‌

"The one genre that doesn’t really work for me as a blind audience member are the superhero movies," he said, conspiratorially. "'Thor,' 'X-Men,' 'Superman' — it all sort of seems to be eye candy. They have all these incredible performers, and they all know how to act — studios need to give them something to work with! At the very least, they need to talk to each other more during fight scenes, not just grunt and roar."

Movies and TV shows are part of our shared cultural fabric — whether we're watching them for the action on the screen or listening to them for the stories they tell.

While, as Edison said, "there's nobody audio-describing our lives," anyone can appreciate the moviegoing experience of blind people on their own. So next time you settle in for a night on the couch or head to the theater for a break (and some $12 popcorn), maybe try closing your eyes and listening to the film instead. You might end up seeing it in a whole new way.