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Dutch 'dementia village,' a whole neighborhood designed for memory loss, is a game-changer

The Hogeweyk provides a sense of "normalcy" for people living with dementia.

Photo credit: Canva

People with dementia can roam freely in a dementia village.

There are a lot of extremely challenging things about getting older, but one stands about the rest. Living with dementia is not easy, nor is living with someone living with dementia. No matter how much caregivers may want to keep a loved one with dementia in their home, it's not always feasible. But moving them into a traditional care facility isn't always ideal, either.

That's where a "dementia village" comes in as an alternative. Instead of trying to fit a person with dementia into a living situation that either isn't designed for them or is overly focused on their limitations, a dementia village is an environment designed specifically to help people with severe dementia feel safe and free and live as normal a life as possible.

dementia, dementia care, alzheimer's disease, dementia village, memory care People with dementia tend to remember distant memories and forget recent ones.Photo credit: Canva

The Hogeweyk was the world's first dementia village, founded in 2009. Since then, the idea has been replicated in dozens of locations all over the world. The concept is quite simple: A full, self-contained neighborhood where people with dementia can walk around freely without fear of getting lost, where everyone from shopkeepers to restaurant servers to salon workers are trained in dementia care, and where people who are losing their memory to dementia diseases are treated as people who still have aspirations.

Eloy van Hal, one of the founders of the Hogeweyk, explained to Vox how the guiding principle of the village is "normalcy." Traditional nursing homes keep all residents under one roof, and they are subject to do whatever program the institution provides for them. In the Hogeweyk, people live in small groups of six or seven in apartments with furnishings like they'd have at home. Distinct landmarks in the public space help residents know where they are, and putting a theater, grocery store, barber shop, etc. in separate buildings encourage movement through the neighborhood.

"It's about choice, choice, choice, where you want to be during the whole day and with whom," said van Hal. The idea is to balance safe design with controlled risk, allowing for as much of a normal life as possible.

- YouTube youtu.be

The one downside to the village concept, of course, is cost. Without adequate funding assistance from governments, living in a dementia village can be prohibitively expensive.

Does it really make a difference for residents, though? Has it been proven that outcomes are better than traditional care models? With dozens of villages now being used around the world, research is ongoing but the data from the Hogeweyk is promising. People in the comments of Vox's by Design video shared how such facilities have been life-changing for their loved ones and how traditional care doesn't always meet the needs of people with dementia.

"My grandmother had dementia and when her caretaker who was my grandfather (her husband) passed unexpectedly we had to scramble to get her into a memory care facility in the US. The first place she was in temporarily was so sad, I could see her spirit drain but after about a year we were able to get her into a "village" and the quality of life difference is nothing short of ASTOUNDING! She could function in a way that was familiar and comfortable to her and not be in a foreign hospital setting. The abrupt change from a home where they are familiar, to a clinical setting must be very disorienting and upsetting to these people. That side of my family had mental health issues and memory loss starts early, so I know it will happen to me to some extent and I only hope I can have people take care of me as well as in this Hogeweyk."

"I've worked in a nursing home through high school and college. While I can't say it was the worst place for dementia patients, it certainly did not work well for all of them. One patient once tried to wedge herself through the door begging to go outside with me and I even had patients confide in me that they hated being institutionalized, they missed being able to live a normal life, being part of a real community, and being able to come and go as they pleased. This concept is probably the closest thing possible to a normal life a dementia patient could ever have."

dementia, dementia care, alzheimer's disease, dementia village, memory care All the workers in a dementia village are trained in memory care.Photo credit: Canva

"A relative of mine used to get aggressive, violent and angry when she would encounter a locked door in the institution she was in. She couldn't understand why there would be a locked room in what she understood to be 'her home', this would take a lot of calming down and management, only for her to discover another locked door, and kick off again. I love these village based models as they allow autonomy for residents, and have an individual experience. Just because someone has a brain disease doesn't mean they aren't entitled to the very best care. I hope the govt spends far more on these establishments in the future."

"As he said at the end, people with dementia are still people—even if there is proven to be no benefits to this model over a care home, I would much prefer to have dignity in my final days than live in a clinical trap. Love all the incredible ideas the Netherlands come up with."

Dementia care is something Americans are going to have to look at closely. According to The Alzheimer's Association, the number of people living with Alzheimer's is set to nearly double from seven million to 13 million by the year 2050. As more of our elders require full-time care, the more we'll have to consider prioritizing putting resources into things like dementia villages.

Everyone deserves safety and a good quality of life. The Hogeweyk is a great example of what it looks like to view people with dementia as people first and to care for them accordingly.

This article originally appeared in April. It has been updated.

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Boomers and older Gen Xers share 40 innovative ways they keep their brains sharp

They do so much more than crosswords.

Image via Canva

Older people share surprising and simple ways they keep their brains healthy and sharp.

One of the biggest battles of healthy aging is staying mentally sharp. Having a healthy brain is important for mental and physical longevity.

Data from the Centers for Disease Control and Prevention (CDC) reports that 6.7 million older adults in the United States have Alzheimer’s disease, the most common type of dementia. The CDC notes that by 2060, that number will double.

However, being proactive about brain health can help keep aging brains thriving. In an online forum of Boomers and older Gen Xers, they opened up on how they keep their brains sharp and memory strong. These are 40 surprising (and simple) ways they've maintained healthy brains as they've aged.

aging, healthy aging, mental sharpness, sharp brain, aging well Aging Old Man GIF by A&E Giphy

"I take on-line college courses. Pick one out that piques my interest and sign up. The advantage at my age is I can study whatever I want, I'm not really concerned with advancing my career. Ancient Mediterranean History? Sure why not? History of Beer? Why not? Psychology of Evil? Sounds interesting. All on-line, all cheap. Keeps my brain active." - mike11172

"I'm way into fitness and still work out with weights. Also walk a lot and do fun things outdoors. I make sure that I get outside at least an hour every day. I'm careful to eat good foods that meet nutritional requirements, especially since I work out. I drink plenty of fresh filtered water. Taking care of your health in these three ways really makes a difference in one's mental sharpness and attitude. I belong to a religion that encourages me to treat others kindly and to be thankful for the life I have. Participate in activities that involve helping others. That really makes anybody feel good, have a purpose, and be glad they have the means to give of themselves. My husband and I make a point to always treat each other like we're newlyweds. Keeping the stress in your home to a minimum improves your mental state. In my down time, I've gotten into paper art. It's fun and an easy way for anyone to stay creative. I make cute things and greeting cards for others." - Bebe_Bleau

knowledge, learning, brain health, sharp brain, sharp mind Learn The More You Know GIF by @InvestInAccess Giphy

"I write novels and memoir essays. The novels require a lot of research about settings and history. Unexpectedly, even the memoirs require research, because I took for granted behaviors and ideas that need to be explained for modern readers since nobody takes them for granted anymore. I volunteer for a local organization that helps provide food and medicine to households who have run out of money before the next paycheck. I work with recent immigrants who speak little English and am constantly learning new things about what it's like to struggle for survival in lives of utter poverty." - Building_a_life

"Just use it. The brain works a lot like muscles in the sense that it will degrade quickly if you don't use it but can maintain its abilities for a long ass time if you do use it. I've met so many older people who basically just stop doing anything that requires a lot of thought when they get older because thinking is a lot of work. And you can definitely tell that kind of person when interacting with them. Conversations with them feel more like talking with a bunch of pre-recorded responses. Just do stuff that requires a lot of thought. Learn new skills. Read about complex, interesting ideas. Do puzzles. Play chess." - Yak-5000

"Started flying a small airplane a few years ago at 64. Mentally challenging." - slick62

wordle, puzzles, wordle puzzle, doing puzzles, brain health New York Times Running GIF by PERFECTL00P Giphy

"All the many word puzzles: Wordle, Quordle, Octordle, Connections, Squaredl, Blossom, etc. Crosswords, jigsaw puzzles, hour + walks per day. Writing, reading, cooking. Day trips and quick trips of 1-3 nights. Working really got in my way!" - Conscious-Reserve-48

"Counseling. It is important to keep processing your feelings, otherwise they pile up." - arkofjoy

"I quit smoking and started juggling. I'm no performer, but it keeps the nervous system active and it's fun for the whole family. Learning new tricks that are counterintuitive is the hardest, especially with new devices. I mostly stick to 3 balls, as I prefer to get good with simple things." - Tempus_Fuggit

"I'm fixing up an old sailboat when I'm not doing house maintenance /upgrades." - darkcave-dweller

gen z, gen z gif, gen z kids, gen z life, gen z culture Nick Kroll Fx GIF by Adults Giphy

"I have in-depth conversations with my GenZ kids. No restrictions on topics. They are phenomenally smart, well-informed, and engaged." - CommissarCiaphisCain

"Crossword puzzles. More importantly I work with teens who teach me the latest jargon among other things. I adore them all." - Kissoflife1

"I've spent most of my life living in foreign countries and really don't know any other life. My budget in old age allows me to annually travel solo to third world countries. I'm keeping my mind active by always trying to figure things out like communicating in some foreign language, organizing my own hotel reservations, traveling arrangements etc. Things frequently get off the rails, so I have lots of practice figuring out the answer to the questions like, what the heck should I do now?" - nonsense39

spanish, learning spanish, speaking spanish, learning language, new language spanish gif Giphy

"I learned to play a musical instrument and I’m taking Spanish lessons. These activities really challenge the brain." - ClawhammerJo

"I consume very little mainstream news. The more mainstream news you watch, the less you understand about the world--it's not meant to inform, it's meant to divide us and manipulate our prejudices. Finally, I've adopted the idea that pessimists are pessimistic because they imagine they can predict the future. I know and accept that I can't predict the future, so I'm optimistic. The possibilities are, as they've always been, infinite. I don't dwell on the past, and I don't worry about the future." - crackeddryice

line dance, line dancing, learning line dancing, line dance gif, line dancing hobby Country Music Old Town Road GIF by Lil Nas X Giphy

"Line dancing. It uses the brain and the body, and in my area I’ve found I can dance several times a week." - littleoldlady71

"I read a lot of books. I listen to a lot of music. I hike as much as I can. I meditate daily. All seem to be important for my brain." - WingZombie

"A good brain takes regular practice. Think like a young person by talking to young people…asking them about their thoughts and ideas…they aren’t interested in my opinions much. Read about technological advances, social studies, philosophy and art. Learn and practice languages. And ride a motorcycle on and off road. My wife and I go somewhere or do something new once a week. I like getting strangers to laugh. I also smile and share joy wherever possible." - gorongo

"My Amazon deliveries are made to a set of lockers onsite. I will never walk up to the lockers and THEN pull out my phone to look for the code. I will look at the message with the code and force myself to remember it before I ever enter the building so I can just walk up to the lockers, enter my code and get my stuff without anyone having to wait on me. I find that my brain will spontaneously make all sorts of associations to the numbers that help me remember them. Whether this helps in the long run, who knows? I just know it kind of makes those trips to the locker like a game for me." - chonnes

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Inside a Dutch 'dementia village,' where the whole neighborhood is designed for memory loss

The Hogeweyk provides a sense of "normalcy" for people living with dementia.

Photo credit: Canva

People with dementia can roam freely in a dementia village.

Living with dementia is not easy, nor is living with someone living with dementia. No matter how much caregivers may want to keep a loved one with dementia in their home, it's not always feasible. But moving them into a traditional care facility isn't always ideal, either.

That's where a "dementia village" comes in as an alternative. Instead of trying to fit a person with dementia into a living situation that either isn't designed for them or is overly focused on their limitations, a dementia village is an environment designed specifically to help people with severe dementia feel safe and free and live as normal a life as possible.

dementia, dementia care, alzheimer's disease, dementia village, memory care People with dementia tend to remember distant memories and forget recent ones.Photo credit: Canva

The Hogeweyk was the world's first dementia village, founded in 2009. Since then, the idea has been replicated in dozens of locations all over the world. The concept is quite simple: A full, self-contained neighborhood where people with dementia can walk around freely without fear of getting lost, where everyone from shopkeepers to restaurant servers to salon workers are trained in dementia care, and where people who are losing their memory to dementia diseases are treated as people who still have aspirations.

Eloy van Hal, one of the founders of the Hogeweyk, explained to Vox how the guiding principle of the village is "normalcy." Traditional nursing homes keep all residents under one roof, and they are subject to whatever program the institution provides for them. In the Hogeweyk, people live in small groups of six or seven in apartments with furnishings like they'd have at home. Distinct landmarks in the public space help residents know where they are, and putting a theater, grocery store, barber shop, etc. in separate buildings encourage movement through the neighborhood.

"It's about choice, choice, choice, where you want to be during the whole day and with whom," said van Hal. The idea is to balance safe design with controlled risk, allowing for as much of a normal life as possible.

- YouTube www.youtube.com

The one downside to the village concept, of course, is cost. Without adequate funding assistance from governments, living in a dementia village can be prohibitively expensive.

Does it really make a difference for residents, though? Has it been proven that outcomes are better than traditional care models? With dozens of villages now being used around the world, research is ongoing but the data from the Hogeweyk is promising. People in the comments of Vox's by Design video shared how such facilities have been life-changing for their loved ones and how traditional care doesn't always meet the needs of people with dementia.

"My grandmother had dementia and when her caretaker who was my grandfather (her husband) passed unexpectedly we had to scramble to get her into a memory care facility in the US. The first place she was in temporarily was so sad, I could see her spirit drain but after about a year we were able to get her into a "village" and the quality of life difference is nothing short of ASTOUNDING! She could function in a way that was familiar and comfortable to her and not be in a foreign hospital setting. The abrupt change from a home where they are familiar, to a clinical setting must be very disorienting and upsetting to these people. That side of my family had mental health issues and memory loss starts early, so I know it will happen to me to some extent and I only hope I can have people take care of me as well as in this Hogeweyk."

"I've worked in a nursing home through high school and college. While I can't say it was the worst place for dementia patients, it certainly did not work well for all of them. One patient once tried to wedge herself through the door begging to go outside with me and I even had patients confide in me that they hated being institutionalized, they missed being able to live a normal life, being part of a real community, and being able to come and go as they pleased. This concept is probably the closest thing possible to a normal life a dementia patient could ever have."

dementia, dementia care, alzheimer's disease, dementia village, memory care All the workers in a dementia village are trained in memory care.Photo credit: Canva

"A relative of mine used to get aggressive, violent and angry when she would encounter a locked door in the institution she was in. She couldn't understand why there would be a locked room in what she understood to be 'her home', this would take a lot of calming down and management, only for her to discover another locked door, and kick off again. I love these village based models as they allow autonomy for residents, and have an individual experience. Just because someone has a brain disease doesn't mean they aren't entitled to the very best care. I hope the govt spends far more on these establishments in the future."

"As he said at the end, people with dementia are still people—even if there is proven to be no benefits to this model over a care home, I would much prefer to have dignity in my final days than live in a clinical trap. Love all the incredible ideas the Netherlands come up with."

Dementia care is something Americans are going to have to look at closely. According to The Alzheimer's Association, the number of people living with Alzheimer's is set to nearly double from seven million to 13 million by the year 2050. As more of our elders require full-time care, the more we'll have to consider prioritizing putting resources into things like dementia villages.

Everyone deserves safety and a good quality of life. The Hogeweyk is a great example of what it looks like to view people with dementia as people first and to care for them accordingly.

This article originally appeared in April.

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Cole Escola's touching insight about dementia has people moved to tears

"We were meeting in the middle of her memory."

en.m.wikipedia.org

Cole Escola poses in front of a bright wall.

How many people can say they were a finalist for a Pulitzer Prize for a comedy they wrote? What if the comedy was a re-imagining Mary Todd Lincoln as a resentful manic-pixie dream girl with a drinking problem and dreams of becoming a cabaret star? Cole Escola can. (It's a very small, specific list.)

Cole (who uses they/them pronouns) is the writer and star of the Tony-nominated Broadway hit Oh Mary! and simply never stops pushing boundaries. But as hilarious as they are, they are equally as vulnerable and thoughtful when it comes to sensitive life issues. Always a writer, Cole sees the world through an extremely unique, one-of-a-kind lens and pushes people to think about comedy, tragedy, love, adversity, addiction, death, and everything in between in a way not often seen.

Just this past week, Cole gave a candid interview to Mo Rocca on CBS Sunday Morning. One topic they discussed is how, after a traumatic event with their father at around age five, they moved in with their grandmother. Cole explains, "She had the early stages of Alzheimer's, so she would repeat stories a lot. But I loved them. I loved her stories."

"I realize now that when she would tell these stories, we were meeting in the middle of her memory. She was living out the fantasy of her childhood, and I was also living out my fantasy of being a young girl on a farm in Alberta." When asked if they minded being told the same story, Cole answered, "No. I loved it."

The comment section, just from this clip alone, generated a lighthouse of support. One person writes, "Just when you think you can’t love Cole anymore, they drop something like this that gives you another level of respect for them." Like many, people acknowledge how inspired and moved Cole makes them, whether through laughter or tears. "You’ve made me laugh for years and now you’ve made me cry."

But it's from the standpoint of Cole's love and respect for their grandmother that seems to truly resonate. "So beautiful. Cole is a treasure, and it sounds like their grandmother was too." And as a grandmother themselves, this commenter shares, "Littles love to hear stories over and over. My grandbaby says 'Keep telling me the story, I want to hear it again and again!' So adorable. Glad you were able to find comfort with your gramma."

Using storytelling as a healing device for people with types of dementia and their loved ones and caregivers is popular among many doctors and therapists. It's not just reading and sharing stories with the patients, but letting them share their stories, too. A 2012 NPR: article notes that, "Storytelling is one of the most ancient forms of communication—it's how we learn about the world. It turns out that for people with dementia, storytelling can be therapeutic. It gives people who don't communicate well a chance to communicate. And you don't need any training to run a session."

stories, storytelling, elderly people, dementia, therapyTwo elderly people have a conversation. Photo by Cristina Gottardi on Unsplash

The piece also cites Anne Basting, the founder of a program called TimeSlips, whose aim is to help empower people to use stories to express themselves, no matter their memory ability. "Our bold vision is that creative expression, growth, and meaning is available to us all at every stage of life, wherever we live and whatever our abilities," they share.

Basting explains, "People with dementia start to forget their social role; they might not remember they're a spouse...a parent. They need a social role through which they can express who they are, and the role of storyteller really supplies that."

Cole Escola, even at a very young age, tapped into this empathetic wisdom. They continue to lovingly honor their grandmother by being an incredible storyteller in their own right.

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