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Health

Impossible-sounding surgery cures blindness by implanting a patient's own tooth in their eye

"Tooth-in-eye" surgery sounds like something out of science fiction, but it permanently restores vision in 94% of patients.

Canva Photos

You have to see it to believe it.

About 12 million people in the United States live with significant visual impairment. About a million of those people live with blindness. Unfortunately, there is no known cure for blindness. Therapies exist to slow vision loss, and some vision loss can be improved with treatment, but complete vision loss has proved to be a very tough nut for scientists to crack, in part because there are so many different potential causes of blindness.

Medical researchers have and continue to look into lots of diverse options, including stem cell therapies, gene therapies, bionic eyes, and now...teeth. Yes, you read that right. Teeth.

A 33-year-old man recently became the first person in Canada to have their sight restored by a rare and outrageous-sounding procedure: Osteo-odonto-keratoprosthesis, or OOKP.

OOKP has been around since the 1960s and has been performed around the globe, but is still relatively rare overall. Invented by Professor Benedetto Strampelli, the procedure is better known by its easy-to-remember, and fairly gross, nickname: "Tooth-in-eye surgery." Why in God's name is it called that? Buckle up if you're squeamish. Here's how it works:

gif of man buckling seatbeltBuckle up; this is going to be wild. Giphy

First, a tooth is removed from the patient. A small rectangular section of the tooth is shaved off and a hole is drilled in the middle of it. Imagine cutting a small circle out of the middle of a sheet of paper.

Then, a small plastic lens is inserted into the hole, almost like a window covering or a makeshift camera lens. The section of tooth acts like a frame to hold the new lens.

OK, now for the really wild part: The rectangular shaving of tooth, complete with plastic lens, is then embedded into the patient's cheek in order to grow new tissue and blood vessels. It will stay there for around two months while the new tissue develops.

The tooth is then removed from the cheek and surgically embedded into the patient's eyeball, effectively replacing the damaged cornea. The new eye is pink and bloodshot in appearance, and a little bulbous, with only a small block hole as an iris. But, miraculously, it works!

The patient's own teeth are used to prevent the body rejecting foreign tissue or materials. Tooth-in-eye surgery only works for vision loss caused by corneal damage, or damage to the surface of the eyes. It won't heal or replace the optic nerve or retina, so it's not a miracle cure for all forms of blindness. It also comes with some risks, but when it works, it works. One study showed that 94% of successful cases still had good eyesight almost 30 years later, with some formerly blind patients seeing well enough to drive cars.

The Canadian man became blind at the age of 13 after a terrible autoimmune reaction to ibuprofen. After dozens of surgeries and therapies, OOKP was his last-ditch effort to permanently restore his sight. Other treatments had helped but his sight would fade away over time. For now, his story is a massive success that doctors are hoping will inspire others to give the controversial procedure a try.

The video below shows the procedure and its aftermath:


@garcidltth1

#popularscience #knowledge #fyp #tiktok

We have to keep funding bizarre, off-the-beaten-path scientific research.

This sounds like one of those wacky things you'd see in the news and say, "Why are we spending millions of dollars trying to see if we can grow new eyeballs from teeth?!" But without critical and creative research like this, we'd be no further in treating conditions like blindness. A version of OOKP was performed successfully in the United States at The University of Miami in 2009.

Amazing medical breakthroughs can come from the strangest places. Fascinating discoveries have been made by making people drink their own blood and monitoring the effects, studying the chemical makeup of goose poop, and looking for answers in tree bark, snake venom, and rat poison.

Cheers to Professor Benedetto Strampelli, and his weird but effective stroke of inspiration.

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There are blind doctors, lawyers, and athletes. It's time more workplaces caught up.

If the first thing you think of when you hear 'blind person' is all the things they can't do, this campaign is for you.

True
Perkins School for the Blind

There are more than 23 million people who are blind or have experienced vision loss in the United States and Canada.

They are doctors, lawyers, and professional athletes. They're actors, writers, and daredevils. They love skiing, dancing, and watching movies.

Check out this moving video about ways that blind or visually-impaired people are challenging misconceptions:


‌‌

There's also an audio-described version of the video here.

While being blind or vision-impaired has little bearing on people's ability to do many jobs, it does affect their ability to get a job in the first place.

Fred LeBlanc knows this all too well.

LeBlanc is the star of a PSA created by the Canadian National Institute for the Blind (CNIB). After 29 years working as a firefighter, he began to lose his sight in 2011. A diagnosis of legal blindness followed soon after. In an interview with the CNIB, he talked about how his diagnosis made him doubt his abilities to remain in the workforce:

"I questioned myself. If I struggled with everyday tasks, how was I going to lead a fulfilling career?”

With the support of the CNIB and other blind workers, LeBlanc found his confidence. He decided to run for the position of 13th District vice president with the International Association of Fire Fighters, a job he still holds.

"I thought 'why can’t I do what I set out to do?' I had to tell myself 'don’t be silly, this is not your fault, there’s nothing to be ashamed of,'" he told CNIB.

‌There's plenty of room at the table for blind workers — as long as we give them the chance. Image via iStock. ‌

In Canada, about 60% of people of working age are employed. That number drops to just 32% for the visually-impaired. Similarly, according to the latest data from the U.S. Bureau of Labour Statistics, only about a third of working-age Americans with visual impairments or blindness were employed in September 2016.

Diane Bergeron, the executive director of CNIB, says that's not for lack of trying. In an interview with the Toronto Star last month, she relayed her frustrations, saying, "We go out, we get an education and then we come out of education and when we want a job there’s no job to be had."

According to the CNIB, creating a workplace that is inclusive and welcoming for blind and sighted workers isn't as daunting as it might seem.

‌A man reads on his tablet. Substituting printed correspondence for digital is one easy way to make a workplace more accommodating for people who are visually-impaired. Image via iStock. ‌

Jim Lee, Chief of Staff to the General President, International Association of Fire Fighters, is Fred LeBlanc's boss at the IAFF. For him, working with Fred is a mind-opening experience.

Prior to working with LeBlanc, Lee had no experience interacting with someone who is blind or partially sighted. Lee quickly saw firsthand that LeBlanc's abilities didn't change, even though his vision did. "Unless he tells you, you wouldn't know that Fred has vision loss," Lee told the CNIB. "His abilities didn't change at all."

To accommodate his colleague's vision loss, Lee and his team made minor adjustments to their workplace. Rather than printing hard copies, they focus on email correspondence. Documents use an off-white background to provide easier visual contrast.

Realizing how little things needed to change helped Lee understand that vision impairment doesn't mean workers needed to exit or stay out of the workforce.

"People with visual impairments have a lot to offer," said LeBlanc. "They just need the opportunity to prove that. Employers have to give them a chance to come in and show what they can do. A lot of employers would be amazed."

It would be easy to tell a story about blindness that focuses on depressing statistics around working or employment. After all, there are a lot.

‌A doctor and a patient look at a computer screen. A more inclusive workplace benefits everyone. Image via iStock. ‌

But the real power is in flipping that story to one of empowerment. Whether they choose to become athletes, artists, or professionals, individuals who are blind can and do lead rich, fulfilling lives, like anyone else. It's time to elevate the work experiences of people like Fred LeBlanc and remind everyone that blind workers can thrive in whatever career they desire — when employers give them the chance.

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Tommy Edison watches movies for a living. He's never actually seen one.

If you're only watching movies, you might be missing out.

True
Perkins School for the Blind

Tommy Edison was born blind. That didn't stop him from falling in love with movies.

If your first reaction upon reading that was to wonder how a blind person watches movies, Edison understands. It's a question he's answered a lot in his job as the Blind Film Critic on YouTube.

"I'm always asked how I can enjoy films without being able to see them," he said. "But for me, there's so much more to the experience — there's story, there's dialogue, there's music and sound. It's a lot more than what you watch on the screen."


For blind movie lovers like Edison, knowing that there are actors and action on the big screen is only a small part of experiencing cinema.

‌Tommy Edison, the Blind Film Critic. Image via Tommy Edison, used with permission.‌

"For me, the biggest part of a film is the story," he said. "Movies like 'Goodfellas' or 'Clerks' don't even need the visuals — their storytelling is so strong and the performances are so skilled. As soon as those movies started, I was right in the story."

Even if a film doesn't have amazing performances, it can make up for it with an excellent soundscape. "There was an incredible movie called 'The Grey,' starring Liam Neeson, a few years back," said Edison. "Most of the action took place outside, and the sound editors took advantage of the surround sound in the theater to make it feel like we were right there with them. I could hear the rain all around me — so much that I wanted to wipe it off my head, it felt so real."

At the moment, a lot of big-budget movies revolve around action sequences without dialogue — a challenging situation for blind moviegoers. That's when audio descriptions are helpful.

‌A woman listens with headphone to a movie playing on her laptop. For blind movie watchers, hearing the action is just as good as seeing it. Image via iStock.‌

Like closed-captioning for the hearing-impaired, audio commentary helps vision-impaired or blind people follow along with TV and movie action during scenes with limited dialogue.

According to the American Council of the Blind, three American theater chains — AMC, Cinemark, and Regal — offer audio descriptions on all of their screens. Blind or vision-impaired moviegoers can go to the theater and wear a set of headphones that will play a narration track describing the film's key visual elements like costumes, sets, and other moments only sighted people would experience. Best of all, the track only runs during pauses in lines of spoken dialogue, ensuring non-sighted moviegoers don't miss anything.  

For Edison, an audio description track changed his understanding of one of the most famous movies of the '90s. "I tried watching 'The Matrix' a few times without audio descriptions. I couldn't make it through more than about 20 or 30 minutes of it," said Edison. "The descriptions changed that; they helped me understand what it was about, and how cool of a film it was."

While Edison is appreciative of technological advancements like audio descriptions, he'd rather they weren't necessary.

If he had his way, Hollywood would simply get better at telling stories, rather than showing them.

‌This empty green-screen set could become an entire scene in a superhero popcorn flick. For blind moviegoers like Edison, that's a big problem. Image via iStock.‌

"The one genre that doesn’t really work for me as a blind audience member are the superhero movies," he said, conspiratorially. "'Thor,' 'X-Men,' 'Superman' — it all sort of seems to be eye candy. They have all these incredible performers, and they all know how to act — studios need to give them something to work with! At the very least, they need to talk to each other more during fight scenes, not just grunt and roar."

Movies and TV shows are part of our shared cultural fabric — whether we're watching them for the action on the screen or listening to them for the stories they tell.

While, as Edison said, "there's nobody audio-describing our lives," anyone can appreciate the moviegoing experience of blind people on their own. So next time you settle in for a night on the couch or head to the theater for a break (and some $12 popcorn), maybe try closing your eyes and listening to the film instead. You might end up seeing it in a whole new way.

Tommy Edison was born blind. That didn't stop him from falling in love with movies.

If your first reaction upon reading that was to wonder how a blind person watches movies, Edison understands. It's a question he's answered a lot in his job as the Blind Film Critic on YouTube.

"I'm always asked how I can enjoy films without being able to see them," he said. "But for me, there's so much more to the experience — there's story, there's dialogue, there's music and sound. It's a lot more than what you watch on the screen."

For blind movie lovers like Edison, knowing that there are actors and action on the big screen is only a small part of experiencing cinema.

‌Tommy Edison, the Blind Film Critic. Image via Tommy Edison, used with permission.‌

"For me, the biggest part of a film is the story," he said. "Movies like 'Goodfellas' or 'Clerks' don't even need the visuals — their storytelling is so strong and the performances are so skilled. As soon as those movies started, I was right in the story."

Even if a film doesn't have amazing performances, it can make up for it with an excellent soundscape. "There was an incredible movie called 'The Grey,' starring Liam Neeson, a few years back," said Edison. "Most of the action took place outside, and the sound editors took advantage of the surround sound in the theater to make it feel like we were right there with them. I could hear the rain all around me — so much that I wanted to wipe it off my head, it felt so real."

At the moment, a lot of big-budget movies revolve around action sequences without dialogue — a challenging situation for blind moviegoers. That's when audio descriptions are helpful.

‌A woman listens with headphone to a movie playing on her laptop. For blind movie watchers, hearing the action is just as good as seeing it. Image via iStock.‌

Like closed-captioning for the hearing-impaired, audio commentary helps vision-impaired or blind people follow along with TV and movie action during scenes with limited dialogue.

According to the American Council of the Blind, three American theater chains — AMC, Cinemark, and Regal — offer audio descriptions on all of their screens. Blind or vision-impaired moviegoers can go to the theater and wear a set of headphones that will play a narration track describing the film's key visual elements like costumes, sets, and other moments only sighted people would experience. Best of all, the track only runs during pauses in lines of spoken dialogue, ensuring non-sighted moviegoers don't miss anything.  

For Edison, an audio description track changed his understanding of one of the most famous movies of the '90s. "I tried watching 'The Matrix' a few times without audio descriptions. I couldn't make it through more than about 20 or 30 minutes of it," said Edison. "The descriptions changed that; they helped me understand what it was about, and how cool of a film it was."

While Edison is appreciative of technological advancements like audio descriptions, he'd rather they weren't necessary.

If he had his way, Hollywood would simply get better at telling stories, rather than showing them.

‌This empty green-screen set could become an entire scene in a superhero popcorn flick. For blind moviegoers like Edison, that's a big problem. Image via iStock.‌

"The one genre that doesn’t really work for me as a blind audience member are the superhero movies," he said, conspiratorially. "'Thor,' 'X-Men,' 'Superman' — it all sort of seems to be eye candy. They have all these incredible performers, and they all know how to act — studios need to give them something to work with! At the very least, they need to talk to each other more during fight scenes, not just grunt and roar."

Movies and TV shows are part of our shared cultural fabric — whether we're watching them for the action on the screen or listening to them for the stories they tell.

While, as Edison said, "there's nobody audio-describing our lives," anyone can appreciate the moviegoing experience of blind people on their own. So next time you settle in for a night on the couch or head to the theater for a break (and some $12 popcorn), maybe try closing your eyes and listening to the film instead. You might end up seeing it in a whole new way.

More

He has one of the world's rarest birth defects. Here's what the experience taught his mom.

The inspiring story of how a mother's love conquered people's fear.

When Lacey Buchanan was 23 weeks pregnant, she was told that her baby would probably die.

After her 18-week ultrasound, doctors had noticed something was wrong. Most likely, they told her, it was a cleft palate. But as more time passed, they grew increasingly concerned.

And by the time she arrived at the hospital to deliver her baby, no one knew if he would live.


To everyone's surprise, though, her son was born and he survived.

But he was born with a condition so rare that it's one of only 50 recorded cases in the world Tessier cleft lip and palate, classifications 3, 4, and 5.

This condition, induced by amniotic band syndrome, caused her son's skull to fail to knit together in the womb, resulting in a large V-shaped cleft from his mouth into his eyes. As a result, Christian was born without eyes. He couldn't even close his mouth.

The team at Vanderbilt University Medical Center had never seen a case like it.

Image via Lacey Buchanan, used with permission.

Lacey and her husband, Chris, were overjoyed that their son was alive. But they were also completely overwhelmed. They couldn't take their newborn home right away, and he needed surgery when he was just four days old to close an exposed part of his head.

Then, before he turned three months old, Christian needed a second surgery.

For Lacey, this was extremely difficult.

Not only was she a new mom with a baby in and out of the hospital, but she was also a law student with a full-time job. It was hard to balance everything, and at one point, she said, she had a breakdown.

"I was thankful that Christian had lived, but there was a point when I started saying, 'Why me? Why my child? What have I done to deserve this?'" she recalls.

"Motherhood can make you feel so ill-equipped," she says. "It can make you feel like you're constantly failing. Am I doing enough? Am I screwing up this little tiny human?"

Image via Lacey Buchanan, used with permission.

Then, when the family started taking Christian out in public, she felt judged.

People would point and stare. They would even come up to Lacey and make rude, hurtful comments.

"What's wrong with him?" people would ask. And when Lacey posted a picture of her young son on Facebook, one woman even told her that she was selfish for not aborting him.

These comments really upset Lacey — they felt like personal attacks on her and her son. And they were from strangers.

But instead of giving up, Lacey decided to be proactive and stand up for herself and her child. So she made a video — with handwritten notecards — to explain what happened to him.

Soon, her inbox was flooding with calls, messages, and notes of encouragement. The world had seen Christian, and they wanted to let her know that they cared about him.

"I was shocked. Absolutely shocked," Buchanan says. As a mother, she felt validated. Suddenly, everything didn't seem quite so hard.

Five years later, Christian is a happy, active little boy. He takes karate lessons.

Image via Lacey Buchanan, used with permission.

He plays Christmas carols on the piano.

Image via Lacey Buchanan, used with permission.

He loves Superman.

Image via Lacey Buchanan, used with permission.

And though he can't see, he is still just a normal little boy who likes playing outside in the fall leaves.

As for his mother, Lacey, she's fulfilled her childhood dreams of becoming a lawyer.  

Image via Lacey Buchanan, used with permission.

And she's planning to use her new law degree to help mothers who are struggling to navigate the complex bureaucracy of disability law, like she once did.

To someone unfamiliar with how the law works, the red tape can be overwhelming, she says. "I wouldn't have even known this world existed if it hadn't been for Christian."

She also decided to write a book about her family that hits bookshelves Jan. 10, 2017.

Being a parent is one of the hardest jobs there is, and all parents, at one point or another, doubt themselves.

Though it was scary for Lacey to balance work and school with being a mom to Christian, she succeeded. Having him was a gift in a different kind of wrapping paper, she says.

And it taught her to be a better mom and to be a better human.

And the biggest lesson she learned is also the biggest piece of advice she has for other mothers: "You are enough. If you weren't enough, you wouldn't have had this child."