'People tell me to kill my child . . ." This mom is on a fierce mission to battle hate.
Update: Sophia passed away in May of 2019 surrounded by her loved ones. Natalie Weaver continues to use her voice to advocate for people with disabilities.
Natalie Weaver's holiday photo should have been received with joy like any other family's. Instead, a vile commenter attacked her and her daughter Sophia.
The photo shows Weaver's husband Mark sitting in front of the tree with their 10-year-old daughter, Sophia. As Sophia gazes at the tree in wonder, her smiling dad helps her hang an ornament. It's a sweet photo of a father and his obviously unique daughter sharing a warm holiday moment.
But one woman saw something else—an opportunity to spew hatred and prejudice toward a child with profound needs.
Weaver received a vile message in response to her photo. But rather than ignore it, she published the comment so that people could see what kind of stigma and unkindness people with disabilities can face.
Unfortunately, such comments are not all that uncommon for Sophia's family.
Sophia's deformities and disabilities make her one of a kind, but they aren't what define her.
Sophia was born with facial, hand, and foot deformities. Weaver says she's the only person in the world with her features, and also the only person in the world with her combination of conditions.
"Each year has brought a new diagnosis for Sophia," says Weaver. Her health challenges include an extremely rare immune deficiency, Type 1 diabetes, and Rett Syndrome, a neurological disorder that causes seizures, breathing disorders, tremors, and many other issues, and has left Sophia unable to walk, talk, and use her hands. She needs around the clock care.
But Sophia is so much more than a child with profound needs. She's a daughter, a sister to two younger siblings, and in some ways, a typical sassy 10-year-old.
"Though she goes through a lot," says Weaver, "she is the strongest person I know. She handles it all with a smile and laughs a lot. She has an attitude, rolls her eyes at me and is silly! When her body calms, and the neurological storms pass (this can last a minute, days and weeks) sometimes she surprises us with a word like 'annoying' (she was calling me that!)."
Weaver says that Sophia has brought a lot to their family:
"Though we experience heartache and struggles, Sophia has changed our lives for the better. She makes our live richer, fuller and filled with love. She's taught us to live in the moment and to appreciate the small things. She is my child, and I love her just the same as any other parent loves their child. It seems some people don't understand that. Society has defined beauty, and value but because of Sophia I now have my own definition, and I know what true beauty and value are. Sophia is beautiful, and valuable, and is filled with so much happiness and love. She deserves respect and dignity just like everyone else."
"People often tell me to kill my child, to put her out of her misery . . ."
Weaver decided years ago that she wasn't going to hide her daughter away from the world. She became an advocate for people with disabilities and deformities and shares her family's life with Sophia openly on social media.
Unfortunately, living openly with differences sometimes means receiving horrible, vile comments from the dregs of humanity.
"I've received a lot of comments since I decided to share a glimpse into our lives and Sophia's story to change the stigma surrounding profoundly disabled kids and in Sophia's case also facial deformities. You don't hear or see families like mine often. People often tell me to kill my child, to put her out of her misery, and that she looks horrible, scary and that she is worthless. I receive many different forms of hate speech, discrimination and even death threats against my daughter and me. Someone used her image to promote abortion. In real life, people have screamed at the top of their lungs and laughed, called her a monster, point her out, stare, whisper or pretend she doesn't exist."
Weaver says that people think there's "a magical plug to pull," but there's not. "Sophia is alive because she is strong and her body is strong," says Weaver. "We've never taken any unnecessary measures to keep her alive. We will lose her one day, but while she is here, we will take every step possible to decrease her pain and make her quality of life the best it can be, which is the only reason she's had 28 surgeries."
The idea that anyone would tell a parent their child should die is unfathomable. To imply that they should kill their own child themselves is the height of human cruelty.
We can all help fight the stigma and support people like Sophia and her family.
To learn more about battling the stigma, Weaver suggests checking out https://faceequalityinternational.org, an organization founded by a man with a facial disfigurement and which seeks to create "a world where everyone is treated fairly whatever their face looks like."
Weaver also founded Sophia's Voice, a non-profit organization in Sophia's honor, to help others by providing medical assistance and equipment to people with disabilities, and she has dedicated her Twitter, Facebook, and Instagram accounts to sharing a glimpse into her family's life to change the stigma surrounding kids with facial deformities and profound disabilities.
"I was a very private person for the first 7.5 yrs of Sophia's life because of people like the lady who made this public comment," says Weaver. "Once I decided to no longer hide, I have made it my mission to fight for the dignity and respect that profoundly disabled people and people with facial deformities deserve."



A Generation Jones teenager poses in her room.Image via Wikmedia Commons
An office kitchen.via
An angry man eating spaghetti.via 



An Irish woman went to the doctor for a routine eye exam. She left with bright neon green eyes.
It's not easy seeing green.
Did she get superpowers?
Going to the eye doctor can be a hassle and a pain. It's not just the routine issues and inconveniences that come along when making a doctor appointment, but sometimes the various devices being used to check your eyes' health feel invasive and uncomfortable. But at least at the end of the appointment, most of us don't look like we're turning into The Incredible Hulk. That wasn't the case for one Irish woman.
Photographer Margerita B. Wargola was just going in for a routine eye exam at the hospital but ended up leaving with her eyes a shocking, bright neon green.
At the doctor's office, the nurse practitioner was prepping Wargola for a test with a machine that Wargola had experienced before. Before the test started, Wargola presumed the nurse had dropped some saline into her eyes, as they were feeling dry. After she blinked, everything went yellow.
Wargola and the nurse initially panicked. Neither knew what was going on as Wargola suddenly had yellow vision and radioactive-looking green eyes. After the initial shock, both realized the issue: the nurse forgot to ask Wargola to remove her contact lenses before putting contrast drops in her eyes for the exam. Wargola and the nurse quickly removed the lenses from her eyes and washed them thoroughly with saline. Fortunately, Wargola's eyes were unharmed. Unfortunately, her contacts were permanently stained and she didn't bring a spare pair.
- YouTube youtube.com
Since she has poor vision, Wargola was forced to drive herself home after the eye exam wearing the neon-green contact lenses that make her look like a member of the Green Lantern Corps. She couldn't help but laugh at her predicament and recorded a video explaining it all on social media. Since then, her video has sparked a couple Reddit threads and collected a bunch of comments on Instagram:
“But the REAL question is: do you now have X-Ray vision?”
“You can just say you're a superhero.”
“I would make a few stops on the way home just to freak some people out!”
“I would have lived it up! Grab a coffee, do grocery shopping, walk around a shopping center.”
“This one would pair well with that girl who ate something with turmeric with her invisalign on and walked around Paris smiling at people with seemingly BRIGHT YELLOW TEETH.”
“I would save those for fancy special occasions! WOW!”
“Every time I'd stop I'd turn slowly and stare at the person in the car next to me.”
“Keep them. Tell people what to do. They’ll do your bidding.”
In a follow-up Instagram video, Wargola showed her followers that she was safe at home with normal eyes, showing that the damaged contact lenses were so stained that they turned the saline solution in her contacts case into a bright Gatorade yellow. She wasn't mad at the nurse and, in fact, plans on keeping the lenses to wear on St. Patrick's Day or some other special occasion.
While no harm was done and a good laugh was had, it's still best for doctors, nurses, and patients alike to double-check and ask or tell if contact lenses are being worn before each eye test. If not, there might be more than ultra-green eyes to worry about.