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Wellness

MS survivor Montel Williams is helping people connect and thrive through storytelling

MS survivor Montel Williams is helping people connect and thrive through storytelling
via Nick Cannon Admin / Flickr

Montel Williams is a man of many talents, he's the former host of TV's "The Montel Williams Show" which ran for 17 years, radio's "Montel Across America," and has acted on countless television shows.

He served in the U.S. Navy and Marines and was honorably discharged after 15 years of service.

Williams has also been a tireless advocate for veterans, people with multiple sclerosis (MS), and medicinal cannabis.

But his greatest talent may be his perseverance. In 1999 he was diagnosed with multiple sclerosis and has managed to maintain a busy career as a talk show host and advocate.

Now, he has teamed up with Novartis and the Multiple Sclerosis Association of America for its new campaign My MS Second Act. The goal of the program is to encourage people with MS to share their stories to help others face the disease with confidence, hope, and a resounding voice.

MS survivors can download the My MS Second Act digital storytelling tool kit for tips on how to best present their story, then post the final video on the Talk SPMS Facebook page.

Storytelling is a powerful tool to help people with MS learn how to live with a disease that can be erratic. It also allows people with MS to expand their perceptions of the disease and relate with other sufferers.

The stories also allows people to better understand the progress of the unpredictable disease.

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"Multiple sclerosis can be a very isolating disease, so the need to connect with others is especially critical for the MS community," said Amanda Montague, Vice President of Education and Healthcare Relations, MSAA.

"We encourage those living with MS to recognize their MS progression and use the My MS Second Act storytelling toolkit to share their stories, have more meaningful conversations with their healthcare providers and inspire others living with MS to do the same," Montague continued.

via Wikimedia Commons

Upworthy got the chance to speak with Williams about his personal journey with MS, the power that comes with sharing our own stories, and why he has hope for the future.

Upworthy: What were the first MS symptoms you experienced?

Montel Williams: I should have been diagnosed back in 1980 when I was a senior at the Naval Academy. I went blind in my left eye and experienced some other odd neurological blips like left-side weakness and some numbness spots in my body that couldn't be explained.

UP: It took nineteen years of enduring these symptoms before you were diagnosed in 1999. Was that due to the lack of MS research at the time?

MW: I think people still go through that now but not to the same extent. Back then, doctors thought it was a disease that primarily affected caucasian women of northern European descent, not African Americans.

In fact, if you go back and look at it, the only African-American person that made the news was Lola Falana who got diagnosed with MS and then, after her, Richard Pryor, but his diagnosis was incorrectly attributed to his drug use.

Now, you look at family lineage, I am biracial. my mother was half Caucasian, and her mother was from Scotland and Ireland. So, I kinda fit the profile. But back then no one possibly thought that an African-American male could be diagnosed with MS.

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UP: How would your life have been different if you were diagnosed back in 1980?

MW: I was fortunate that it was misdiagnosed because I literally would have been pulled off active duty. Back then, the military didn't allow you to be on active duty with MS. I probably wouldn't be the same person that I am today. Had the diagnosis come down in 1980, I would not have been commissioned as a naval officer. I wouldn't have had the background that led to starting my own talk show.

A diagnosis of MS in 1980 was entirely different that a diagnosis in 2020. In 1980, the only thing doctors would say is "Go home and die."

via Wikimedia Commons

UP: My MS Second Act is all about allowing people to share their stories. What's the best message one can receive after receiving an MS diagnosis?

MW: It's the fact you're not alone. If we go back into the past, this is a disease that people lost their jobs and families over. You went home and told your husband or wife you have MS and they'd walk out the door on you.

I've had the ability to not just exist with MS but I've been able to thrive with MS. There are so many more stories like mine out there that aren't talk show hosts or celebrities, but people who show they've been thriving since the day the doctor said those words, "You have MS."

Up: You've mentioned that people with MS have had to endure discrimination. What is that prejudice rooted in?

MW: It's really rooted in ignorance and I don't say that as an aspersion, I say it's a lack of knowledge. That's what so good about My MS Second Act, it's not just for the MS survivor. It's also for their family, caregivers, and physicians.

UP: When you were diagnosed did anyone share their MS story with you?

MW: Unfortunately, no. When we go back in time, in say 1999, the number of people who came forward and spoke about MS were very few and far between. If you look back to when Richard Pryor was diagnosed with MS they blamed it on his drug use. People were afraid of coming forward and being labeled a crackhead. "No. it's not that I'm a crackhead. It's a neurological disorder."

We're just now putting together programs that allow people to be proud can be proud and say, "I have MS, but MS won't have me."

UP: Are there any stories you've heard through My MS Second Act that have had a profound effect on you?

MW: Today, at our formal launching of the program, we had three MS survivors who shared their stories with an audience. They were profound in the fact that their diseases manifest in different ways but each one was hopeful about tomorrow. That's one of the most important things about My MS Second Act, it's based on hope.

Up: What gives you hope?

MW: The first day that I got diagnosed I realized that I have MS but I don't have to let MS have me. I'm the same person that walked in and walked out of the doctor's office. That person who walked into the office looked forward to tomorrow. I walked out of that office in 1999 and I still have hope for tomorrow.

I know that no matter what this disease throws at me, I can handle it. As long as I pay attention, gain as much knowledge as I can possibly get, which means listening to the stories of other people, and reading about the most recent information. Knowledge is king. Having more knowledge is what will set you free and help you maintain the course that you're on. I look at tomorrow is another opportunity to do something successful.

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Technology

Here’s how one nonprofit org is using Adobe to change the world

Adobe empowers nonprofits to fundraise, advocate, and further their missions.

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In 2024, it’s practically impossible to function as a nonprofit without the right digital resources. Nonprofits use computer systems and applications for things like education, fundraising, engaging clients, and communicating with donors. However, with limited funding and expertise, it's often difficult to get the digital tools they need to fully support their missions.

The planet needs nonprofit organizations, and nonprofits need better digital tools. For decades, Adobe has provided nonprofits with the tools they need to fulfill their mission—helping them with everything from social media advocacy to educational videos to graphic design. Now, Adobe is offering the pro version of Adobe Acrobat for Nonprofits, the most requested and comprehensive set of document and e-signature tools, for just $15 per user per year, which represents a 94% annual savings off the regular price. This will make it easier than ever for nonprofits to streamline business processes and increase their impact with engaging educational and fundraising assets – from annual reports, contracts and grant submissions to brochures and white papers.

Keep reading to hear more about how Adobe helped one nonprofit improve efficiencies and giveback potential – and how you can start using Adobe tools today for your organization.

A nonprofit success story

Albert Manero, a mechanical engineer and graduate of the University of Central Florida, founded Limbitless Solutions, Inc., as a passion project in a small lab. Today, Limbitless is celebrating its 10-year anniversary and has grown into an interdisciplinary team based at the University of Central Florida in Orlando that includes 50 interns with nine different fields of expertise. Their mission? To inspire and empower underserved communities through creative, accessible technology.

Manero and his team of experts create bionic, 3D-printed arms for children with limb differences. Combining visual storytelling with art and engineering, the Limbitless team wants children with limb differences to feel included and capable, while at the same time, able to express their personal identity more fully. Developing bionic arms covered in flowers or designed like Iron Man’s armor, kids with these bionic limbs can not only grip objects, hold hands and more, but can feel empowered to be themselves.

Using Adobe to make a difference

Limbitless, like many others, has utilized Adobe for Nonprofits offerings, which gives nonprofit organizations access to Adobe programs at a deeply discounted rate, including access programs like Adobe Illustrator, Adobe Express and Adobe Acrobat as well as Adobe’s 3D tools.

Adobe solutions are the oil that keeps organizations running smoothly behind the scenes. For the grant application and reporting processes, employees at Limbitless have credited Adobe Acrobat with helping the team secure funding and communicating clearly with donors and partners. With Acrobat, they’re able to create, edit, and manage PDF documents that look professional and polished. The company has also transitioned most of its internal documentation to digital formats using Acrobat. This includes everything from design blueprints, brand guidelines, intern contracts, and user manuals for bionic limbs.

Better tech for a better future

In addition to helping day-to-day operations run smoothly, Adobe has also helped bring Limbitless’ mission of inclusion and accessibility outside of office walls.

Using Adobe Express, the fast and easy create-anything app, Limbitless has been able to create quick how-to videos for young patients and their families that showcase how to use their bionic limbs, as well as a series of videos promoting STEAM (science, technology, engineering art and math) education. The company’s Operations, Advocacy, and Logistics team utilizes Express as well, developing content and visual assets for their social media accounts. Recently, Limbitless partnered with the Adobe Express’ Animate Characters team to create six unique, limb-different selectable avatar characters for their educational outreach and social media campaigns.

And Adobe is helping Limbitless empower kids with limb differences, too: Limbitless’ comic series, Bionic Kid, was created using Adobe Illustrator and features a superhero with limb differences who uses a Limbitless prosthetic arm. This inspired a fundraising concept initiated from the idea by a Limbitless prosthetic recipient Zachary Pamboukas, which has been used in fundraising efforts for more bionic arms and has already raised over $20,000.

Inside the organization and out, Adobe is enabling people to reach their full potential, contributing to better nonprofit organizations and, overall, a better world.

Learn more about the new Adobe Acrobat for Nonprofits offering and explore more ways Adobe can help your organization today.

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Innovation

Astronaut shares the profound 'big lie' he realized after seeing the Earth from space

This change in perspective could change humanity.

via Rubén Moreno Montolíu/Flickr

Our home, from space.

Sixty-one years ago, Yuri Gagarin became the first human to make it into space and probably the first to experience what scientists now call the "overview effect." This change occurs when people see the world from far above and notice that it’s a place where “borders are invisible, where racial, religious and economic strife are nowhere to be seen.”

The overview effect makes man’s squabbles with one another seem incredibly petty and presents the planet as it truly is, one interconnected organism.

In a compelling interview with Big Think, astronaut, author and humanitarian Ron Garan explains how if more of us developed this planetary perspective we could fix much of what ails humanity and the planet.

Garan has spent 178 days in space and traveled more than 71 million miles in 2,842 orbits. From high above, he realized that the planet is a lot more fragile than he thought.

“When I looked out the window of the International Space Station, I saw the paparazzi-like flashes of lightning storms, I saw dancing curtains of auroras that seemed so close it was as if we could reach out and touch them. And I saw the unbelievable thinness of our planet's atmosphere. In that moment, I was hit with the sobering realization that that paper-thin layer keeps every living thing on our planet alive,” Garan said in the video.

“I saw an iridescent biosphere teeming with life,” he continues. “I didn't see the economy. But since our human-made systems treat everything, including the very life-support systems of our planet, as the wholly owned subsidiary of the global economy, it's obvious from the vantage point of space that we're living a lie.”

It was at that moment he realized that humanity needs to reevaluate its priorities.

“We need to move from thinking economy, society, planet to planet, society, economy. That's when we're going to continue our evolutionary process,” he added.

Garan says that we are paying a very “high price” as a civilization for our inability to develop a more planetary perspective and that it’s a big reason why we’re failing to solve many of our problems. Even though our economic activity may improve quality of life on one end, it’s also disasterous for the planet that sustains our lives.

It’s like cutting off our nose to spite our face.

Actor William Shatner had a similar experience to Garan's when he traveled into space.

"It was among the strongest feelings of grief I have ever encountered," Shatner wrote. "The contrast between the vicious coldness of space and the warm nurturing of Earth below filled me with overwhelming sadness. Every day, we are confronted with the knowledge of further destruction of Earth at our hands: the extinction of animal species, of flora and fauna … things that took five billion years to evolve, and suddenly we will never see them again because of the interference of mankind."

“We're not going to have peace on Earth until we recognize the basic fact of the interrelated structure of all reality,” Garan said.

However dire the situation looks from the surface of Earth, the astronaut has hope that we can collectively evolve in consciousness and wake up and embrace a larger reality. “And when we can evolve beyond a two-dimensional us versus them mindset, and embrace the true multi-dimensional reality of the universe that we live in, that's when we're going to no longer be floating in darkness … and it's a future that we would all want to be a part of. That's our true calling.”


This article originally appeared two years ago.

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Pop Culture

Girl and her extremely rhythmic dog dance to Queen and blow the roof off of 'AGT'

Folks are calling this the best dog act they've ever seen.

America's Got talent/Youtube

“How do we know that the dog is a real dog?” asked Simon Cowell.

What dog owner wouldn’t want to jam out to Queen with their pup while the world watches? Of course, our version probably wouldn’t be nearly as impressive as what Roni Sagi and her black and white border collie, aptly named Rhythm, did for “America's Got Talent” on Tuesday.

First off, audiences knew they’d instantly be in for a treat when Sagi and Rhythm recreated the band’s famous pose for “Bohemian Rhapsody.” But it only got better from there, in a routine that featured a mash-up of “Bohemian Rhapsody” and “Don’t Stop Me Now.”

The dance duo wowed judges and audiences alike with synchronized steps, turns, flips…and even a cool bridge pose trick (seriously, this was a dog owner’s dream come to life). Simon Cowell jokingly asked “How do we know that the dog is a real dog?” because Rhythm was just that good.

Sagi would later end up sharing that Rhythm earned his name from an early age, already tapping his little feet on her bed at only 6 weeks old. By that point, Sagi had already had experience training therapy dogs, which undoubtedly gave her a good foundation for working with her little “tornado storm.”

Perhaps it should come as that much of a surprise that Rhythm is so gifted. After all, border collies are notorious for being able to pick up skills quickly, and there have been several border collies that have broken world records—including records for intelligence, balance and skateboarding (yes, really).

But Sagi seems to credit their chemistry less on Rhythm’s species traits, and more on his individual personality.

“It’s so much fun to have a partner that wants [to perform] as much as you,” she said. “He wants to do it all, and he wants to do it now, and he wants to do it as good as he can.”

Down in the comments, online viewers shared their praises—and awe—for Rhythm’s performance.

“This was the most amazing dog act I've seen!” one person wrote.

“That precious dog Rhythm is SO talented and smart!!! I don’t understand how he knows what to do when his back is to her?!! This dog is truly dancing and just extremely talented!!!” added another.

Still another said, “This dog is the most energetic and enthusiastic I've ever seen.”

Of course, Rhythm wasn't getting all the love. One person wrote, “I don't usually like dog acts, but this was impressive. Roni is very creative with what she does and obviously a great dancer herself and trainer.”

Maybe we can’t get all dogs to perform quite on this level, but it does show us just how amazing man’s best friend really is.

Watch the full act below:

- YouTubewww.youtube.com

This story originally appeared in August

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Parenting

Psychologist shares 15-second trick to make kids of any age less rude and more cooperative

All it takes is a single question.

via Hunter Johnson/Unsplash

A child being rude.

Sometimes, it can feel like half of parenting is repeating yourself over and over again, asking your child to brush their teeth or take a dish from the living room to the sink. It’s exhausting and makes you feel like a nag. Don't you wish there was a simple way to make your kids listen the first time?

Dr. Rebecca Kennedy, aka “Dr. Becky,” is a clinical psychologist and founder and CEO of Good Inside who says she has a quick way to make your kids more cooperative and less rude. Talk about killing two soul-crushing birds with one parenting stone. Dr. Beckly got into psychology after growing up with anorexia as a teenager.

“Okay, no matter how old your kid is, you can use this 15-second tip to decrease rudeness and increase cooperation,” she says in a TikTok video with over 32,000 views. “Find your child today and ask them this question. 'Hey, I was just wondering, what could I do better as your parent?'”

The psychologist says that even if the child has a random or impractical answer such as “Let me stay up ‘til midnight” or “I’d like to eat macaroni and cheese for breakfast, lunch and dinner,” just to listen. Simply by listening, you can change your child’s behavior.

She says we should also ask more questions to further the conversation: “Tell me more. What would that be like?”

Want to improve your relationship with your kid in less than 15 seconds? Watch this reel for a quick-win strategy. 

@drbeckyatgoodinside

Want to improve your relationship with your kid in less than 15 seconds? Watch this reel for a quick-win strategy. The best part: When we use strategies like this in calm moments, we reduce the frequency of difficult moments with our kids. Of course, I’m a realist… I know you need in-the-moment strategies too! Cue: My Conquering Problem Behaviors Workshop. You’ll get an entire toolbox of in-the-moment and outside-the-moment strategies for reducing outbursts and strengthening your bond with your kid. Learn more in the link in bio!

“I mean, imagine your boss coming to you randomly and asking how they could be a better manager to you. Just by asking the question and listening,” she continued. Dr. Becky says that asking our kids how we’re doing as parents communicates three essential ideas: “I care about you. I respect you. I'm invested in this relationship.”

This type of questioning builds a connection with a child that can spill over into other behaviors. “You're building connection. And with more connection always comes more cooperation,” she ends the video.

The big takeaway from the video is that when we enhance our connection with our kids, they will be less likely to disobey or be rude because they feel heard and respected, so there’s no need to act out. They will also return that respect by listening to you when you have a request, such as taking out the trash or putting down their phone and coming to dinner.

Some people in the comments got funny responses when they asked their kids what they could improve. “I asked my 5yr old. I got a mildly scathing look and she said ‘erm, maybe try and burn dinner less next time?’” Collette wrote. “My 5 yo told me to look better and get a haircut,” Mark Amend added.

Dr. Becky’s quick question is a great way for parents to strengthen their relationships when things are going well instead of trying to forge connections during conflict. It’s a great reminder that even when parenting, an ounce of prevention is a pound of cure.

Dr. Becky sums up the importance of prevention in her TikTok caption: “When we use strategies like this in calm moments, we reduce the frequency of difficult moments with our kids,” she wrote.


This article originally appeared in June.

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Golden Years

Study discovers people don't age steadily, but in dramatic bursts at two specific ages

This explains SO much about your 40s.

Photo by Nati/Pexels

If you feel "old" practically overnight, there may be a good reason for that.

Aging is weird. You're trucking along, enjoying your middle-aged life, finally feeling like a real adult, when you look in the mirror one day and gasp. "Where did those wrinkles come from?" "Is that skin on my arm…crepey?!?" "Why am I aching like that?"

Somewhere in your mid-40s, you start noticing obvious signs of aging that seem to arrive overnight. You assume it was a gradual process that you just hadn't noticed, but it sure as heck felt like it happened really fast.

New research indicates that may very well be the case. A study from researchers at Stanford tracked thousands of different molecules in people age 25 to 75 and found that people tend to make two big leaps in aging—one around age 44 and another around age 60. These findings indicate that aging can actually happen in bursts.

“We’re not just changing gradually over time. There are some really dramatic changes,” said senior study author Michael Snyder, Ph.D, geneticist and director of the Center for Genomics and Personalized Medicine at Stanford University. “It turns out the mid-40s is a time of dramatic change, as is the early 60s. And that’s true no matter what class of molecules you look at.”

The researchers assumed the mid-40s changes would be attributed to menopausal or perimenopausal changes in women influencing the overall numbers, but when they separated the results by sex they saw similar changes in men in their 40s.

"“This suggests that while menopause or perimenopause may contribute to the changes observed in women in their mid-40s, there are likely other, more significant factors influencing these changes in both men and women. Identifying and studying these factors should be a priority for future research,” said study author Xiaotao Shen, PhD, a former Stanford Medicine postdoctoral scholar who now teaches at Nanyang Technological University Singapore.

older couple smiling togetherAging happens in bursts, scientists find.Photo by Tristan Le/Pexels

The study included 108 participants who submitted blood and other samples every few months for several years. The scientists tracked age-related changes in 135,000 different molecules—nearly 250 billion distinct data points—to see how aging occurs.

The study may shed light on the reasons for jumps in certain diseases and maladies at certain ages. For the 40-somethings, scientists found significant changes in molecules related to alcohol, caffeine and lipid metabolism; cardiovascular disease; and skin and muscle. For those in their 60s, changes related to carbohydrate and caffeine metabolism, immune regulation, kidney function, cardiovascular disease, and skin and muscle were found.

The study authors did note that lifestyle might play a role in some of these changes. For instance, alcohol metabolism may be influenced by people drinking more heavily in their 40s, which tends to be a period of higher stress for many people. However, the researchers added that these bursts of aging in the mid-40s and early 60s indicate that people may want to pay closer attention to their health around those ages and make lifestyle changes that support greater overall health, such as increasing exercise or limiting alcohol.

The research team plans to study the drivers of these aging bursts to find out why they happen at these ages, but whatever the reasons, it's nice to know that the seemingly sudden onset of age-related woes isn't just in our imaginations.

It's understandable that worry about aging, as physical signs of aging remind us of our own mortality. We also have all kinds of social messaging that tells us youth is ideal and beautiful and old is bad and ugly, so of course we give aging the side-eye. But none of us can avoid aging altogether, so the more positive and healthy we are in our approach to aging is, the better off we'll be, no matter when and to what degree aging hits us.


This story originally appeared in August.

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Education

Listen to famous Victorians having a ball recording their voices for the very first time

Getting drunk and speaking into a phonograph used to be prime entertainment.

AI generated image/Photo credit: Canva, Levin C. Handy/Wikipedia

It's so cool to listen to them ponder a future that would become our present.

The latter part of the Victorian era brought us the invention of photography, and along with it a more realistic—though not completely accurate—glimpse into what life of the time period looked like. And yet, the same can’t be said for what 19th century folks sounded like.

While technically the first recording of a human voice did happen in 1860 (very early on in the Victorian era), it wouldn’t be until the 1880s, when Thomas Edison perfected the technology with his new-and-improved wax cylinder phonograph, that voice recording would become more of a commonplace concept.

In a video created by Kings and Things, we are thrust back in time to when this device made its debut, and subsequently captured the voice of many Victorian era icons. During an evening soirée held in London, George Gouraud, an American employee of Edison, decided to delight his guests by inviting them to record their own personalized message to Edison.

This novel form of entertainment would always start the same way—Gouraud would first toast the guest before prompting them to speak. Needless to say, things would quite quickly turn into drunken fun.

- YouTubewww.youtube.com

But there was also a bit of unintentional foreshadowing that came about. Composer Sir Arthur Sullivan, for example, all but predicted the kind of impact this technology would have on music.

"For myself I can only say that I am astonished and somewhat terrified at the results of this evening's experiments: astonished at the wonderful power you have developed, and terrified at the thought that so much hideous and bad music may be put on record forever,” he said.

Gouraud would hold many demonstrations of the phonograph, both at his home in London and at other social events with elite guests, hoping to record the “voices of the great of all nations, to include alike someday the voices of the living and the dead” so that they might be available for future generations.

Getting that kind of extensive archive, however, wasn’t always easy. Even today, many of us get choked up at the thought of talking on the telephone. The nerves were understandably similar, if not worse, for Victorians not only interacting with a daunting device for the first time, but also the concept of their voice being immortalized.

“It is curious to see how the most distinguished speakers behave when they find themselves in front of the photograph and speak into it,” Gouraud noted. Even the famously confident stage actor Sir Henry Irving apparently became "frightened out of his own voice.”

Eventually other “recordists” were brought on to replicate Gouraud’s work of demonstrating the phonograph. And one of them recorded one of the most well known and influential Victorians of them all, the founder of modern nursing herself—Florence Nightingale.

Here’s what the Lady with the Lamp had to say:

“When I am no longer even a memory, just a name, I hope my voice may perpetuate the great work of my life.”

Other notable recordings include politician William Gladstone and Queen Victoria herself—though her recording was replayed to the point of damaging the quality, and it’s hard to accurately detect whose voice it might belong to. It would be much, much later that any of the recordings could be replayed without any degradation.

This entire video is a great reminder that while we might not ever be able to truly time travel (although here’s hoping!) , that doesn't mean we won’t continue finding new ways to experience the past. It’s also interesting to think what folks a hundred years from now will think of the many, many questionable recordings of ourselves that will live on forever via the internet.

Check out more of Kings and Things' content here.

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