upworthy
Wellness

MS survivor Montel Williams is helping people connect and thrive through storytelling

MS survivor Montel Williams is helping people connect and thrive through storytelling
via Nick Cannon Admin / Flickr

Montel Williams is a man of many talents, he's the former host of TV's "The Montel Williams Show" which ran for 17 years, radio's "Montel Across America," and has acted on countless television shows.

He served in the U.S. Navy and Marines and was honorably discharged after 15 years of service.

Williams has also been a tireless advocate for veterans, people with multiple sclerosis (MS), and medicinal cannabis.


But his greatest talent may be his perseverance. In 1999 he was diagnosed with multiple sclerosis and has managed to maintain a busy career as a talk show host and advocate.

Now, he has teamed up with Novartis and the Multiple Sclerosis Association of America for its new campaign My MS Second Act. The goal of the program is to encourage people with MS to share their stories to help others face the disease with confidence, hope, and a resounding voice.

MS survivors can download the My MS Second Act digital storytelling tool kit for tips on how to best present their story, then post the final video on the Talk SPMS Facebook page.

Storytelling is a powerful tool to help people with MS learn how to live with a disease that can be erratic. It also allows people with MS to expand their perceptions of the disease and relate with other sufferers.

The stories also allows people to better understand the progress of the unpredictable disease.

RELATED: If Americans understood how absurd our system is, we'd all be demanding universal healthcare

"Multiple sclerosis can be a very isolating disease, so the need to connect with others is especially critical for the MS community," said Amanda Montague, Vice President of Education and Healthcare Relations, MSAA.

"We encourage those living with MS to recognize their MS progression and use the My MS Second Act storytelling toolkit to share their stories, have more meaningful conversations with their healthcare providers and inspire others living with MS to do the same," Montague continued.

via Wikimedia Commons

Upworthy got the chance to speak with Williams about his personal journey with MS, the power that comes with sharing our own stories, and why he has hope for the future.

Upworthy: What were the first MS symptoms you experienced?

Montel Williams: I should have been diagnosed back in 1980 when I was a senior at the Naval Academy. I went blind in my left eye and experienced some other odd neurological blips like left-side weakness and some numbness spots in my body that couldn't be explained.

UP: It took nineteen years of enduring these symptoms before you were diagnosed in 1999. Was that due to the lack of MS research at the time?

MW: I think people still go through that now but not to the same extent. Back then, doctors thought it was a disease that primarily affected caucasian women of northern European descent, not African Americans.

In fact, if you go back and look at it, the only African-American person that made the news was Lola Falana who got diagnosed with MS and then, after her, Richard Pryor, but his diagnosis was incorrectly attributed to his drug use.

Now, you look at family lineage, I am biracial. my mother was half Caucasian, and her mother was from Scotland and Ireland. So, I kinda fit the profile. But back then no one possibly thought that an African-American male could be diagnosed with MS.

RELATED: Firefighters grant dying forest ranger's final wish to visit the woods one last time

UP: How would your life have been different if you were diagnosed back in 1980?

MW: I was fortunate that it was misdiagnosed because I literally would have been pulled off active duty. Back then, the military didn't allow you to be on active duty with MS. I probably wouldn't be the same person that I am today. Had the diagnosis come down in 1980, I would not have been commissioned as a naval officer. I wouldn't have had the background that led to starting my own talk show.

A diagnosis of MS in 1980 was entirely different that a diagnosis in 2020. In 1980, the only thing doctors would say is "Go home and die."

via Wikimedia Commons

UP: My MS Second Act is all about allowing people to share their stories. What's the best message one can receive after receiving an MS diagnosis?

MW: It's the fact you're not alone. If we go back into the past, this is a disease that people lost their jobs and families over. You went home and told your husband or wife you have MS and they'd walk out the door on you.

I've had the ability to not just exist with MS but I've been able to thrive with MS. There are so many more stories like mine out there that aren't talk show hosts or celebrities, but people who show they've been thriving since the day the doctor said those words, "You have MS."

Up: You've mentioned that people with MS have had to endure discrimination. What is that prejudice rooted in?

MW: It's really rooted in ignorance and I don't say that as an aspersion, I say it's a lack of knowledge. That's what so good about My MS Second Act, it's not just for the MS survivor. It's also for their family, caregivers, and physicians.

UP: When you were diagnosed did anyone share their MS story with you?

MW: Unfortunately, no. When we go back in time, in say 1999, the number of people who came forward and spoke about MS were very few and far between. If you look back to when Richard Pryor was diagnosed with MS they blamed it on his drug use. People were afraid of coming forward and being labeled a crackhead. "No. it's not that I'm a crackhead. It's a neurological disorder."

We're just now putting together programs that allow people to be proud can be proud and say, "I have MS, but MS won't have me."

UP: Are there any stories you've heard through My MS Second Act that have had a profound effect on you?

MW: Today, at our formal launching of the program, we had three MS survivors who shared their stories with an audience. They were profound in the fact that their diseases manifest in different ways but each one was hopeful about tomorrow. That's one of the most important things about My MS Second Act, it's based on hope.

Up: What gives you hope?

MW: The first day that I got diagnosed I realized that I have MS but I don't have to let MS have me. I'm the same person that walked in and walked out of the doctor's office. That person who walked into the office looked forward to tomorrow. I walked out of that office in 1999 and I still have hope for tomorrow.

I know that no matter what this disease throws at me, I can handle it. As long as I pay attention, gain as much knowledge as I can possibly get, which means listening to the stories of other people, and reading about the most recent information. Knowledge is king. Having more knowledge is what will set you free and help you maintain the course that you're on. I look at tomorrow is another opportunity to do something successful.

via Canva

A young couple can't handle high prices and their dad says to save money.

One of the big talking points in the great American millennials versus baby boomers debate is whether the younger generation has knee-capped itself by its lavish spending habits that have prevented them from owning homes. If millennials stopped buying $14 avocado toast and $1,000 iPhones, would they be able to save enough for a down payment on a modest home?

Freddie Smith, 36, of Orlando, Florida, recently went viral on TikTok for a video in which he challenged the boomer argument with statistics from the Bureau of Labor, Federal Reserve, and the U.S. Census Bureau. Smith believes that the older generations misunderstand millennial finances because their concept of luxury is based on 1980s economics. Smith says that for baby boomers, essentials such as rent and child care were much more affordable, but items considered luxuries (TVs, CD players, computers) were much more expensive.

How is the economy different for millennials than it was for baby boomers?

"The main shift is that core essentials—housing, education, healthcare, and even food—have become more expensive," Smith said. "Housing and rent, for instance, now outpace wage growth, making homeownership feel unattainable for many. The cost of childcare has also skyrocketed, and food prices have increased.”

"As a result, I think older generations have a different perspective on luxury versus necessity,” Smith continued. “They grew up in a time when hard work typically led to financial stability, whereas today, even with hard work, many people struggle with the high costs of housing, rent and medical expenses. Basic survival used to be far more affordable, allowing people more financial room to build a stable life."

Smith’s numbers don’t lie. For a person in the '80s to own three TVs, a CD player, a cellphone, a microwave, and a computer, it would cost them 3.5 years of rent or a 20% downpayment on the average home. So, it was irresponsible for someone in that period to purchase all of what was known then as luxuries. However, these days, for a Millennial to have the average apartment and the equivalent amount of "luxuries" would only cost a little over one month's rent.

1980s, boomers, millennialsA 1980s computer and television. via Canva

"But if you skip that daily $6 Starbucks drink, you’ll have enough for the downpayment in 29.22 years," Yokahana joked in the comments. "I hate that housing and transportation have become luxuries," Molly added. "Imagine spending 3x your rent on a microwave," Donutdisaster wrote.

Why are luxury goods more affordable now than they were in the '80s?

The price of manufactured goods has steadily fallen over the last few decades due to technological improvements and trade policies that have allowed the U.S. to import goods from places where labor costs are cheaper. "International, global competition lowers prices directly from lower-cost imported goods, and indirectly by forcing U.S. manufacturers to behave more competitively, with lower prices, higher quality, better service, et cetera," Sociologist Joseph Cohen of Queens University said, according to Providence Journal.

Why are housing prices so high?

Housing prices in the US have soared due to the low inventory caused by the Great Recession, mortgage rates, and zoning laws that make building more challenging. Rents have increased considerably since the pandemic due to low inventory, inflation, barriers to home ownership, and the fact that more people want to live alone than with a roommate or romantic partner.

Smith’s breakdown of the economic changes over the past two generations makes a strong case for the idea that millennial financial troubles have more to do with systemic problems than spending habits. The boomers got a bad deal regarding luxury items, and the millennials with necessities. Wouldn’t living in a world where both were affordable in the same era be great?

All GIFs and images via Exposure Labs.

Photographer James Balog and his crew were hanging out near a glacier when their camera captured something extraordinary. They were in Greenland, gathering footage from the time-lapse they'd positioned all around the Arctic Circle for the last several years.

They were also there to shoot scenes for a documentary. And while they were hoping to capture some cool moments on camera, no one expected a huge chunk of a glacier to snap clean off and slide into the ocean right in front of their eyes.


science, calving, glaciers

A glacier falls into the sea.

assets.rebelmouse.io

ocean swells, sea level, erosion, going green

Massive swells created by large chunks of glacier falling away.

assets.rebelmouse.io

It was the largest such event ever filmed.

For nearly an hour and 15 minutes, Balog and his crew stood by and watched as a piece of ice the size of lower Manhattan — but with ice-equivalent buildings that were two to three times taller than that — simply melted away.

geological catastrophe, earth, glacier melt

A representation demonstrating the massive size of ice that broke off into the sea.

assets.rebelmouse.io

As far as anyone knows, this was an unprecedented geological catastrophe and they caught the entire thing on tape. It won't be the last time something like this happens either.

But once upon a time, Balog was openly skeptical about that "global warming" thing.

Balog had a reputation since the early 1980s as a conservationist and environmental photographer. And for nearly 20 years, he'd scoffed at the climate change heralds shouting, "The sky is falling! The sky is falling!"

"I didn't think that humans were capable of changing the basic physics and chemistry of this entire, huge planet. It didn't seem probable, it didn't seem possible," he explained in the 2012 documentary film "Chasing Ice."

There was too much margin of error in the computer simulations, too many other pressing problems to address about our beautiful planet. As far as he was concerned, these melodramatic doomsayers were distracting from the real issues.

That was then.

Greenland, Antarctica, glacier calving

The glacier ice continues to erode away.

assets.rebelmouse.io

In fact, it wasn't until 2005 that Balog became a believer.

He was sent on a photo expedition of the Arctic by National Geographic, and that first northern trip was more than enough to see the damage for himself.

"It was about actual tangible physical evidence that was preserved in the ice cores of Greenland and Antarctica," he said in a 2012 interview with ThinkProgress. "That was really the smoking gun showing how far outside normal, natural variation the world has become. And that's when I started to really get the message that this was something consequential and serious and needed to be dealt with."

Some of that evidence may have been the fact that more Arctic landmass has melted away in the last 20 years than the previous 10,000 years.

Watch the video of the event of the glacier calving below:

This article originally appeared 10 years ago.

@callmebelly/TikTok

An excellent reminder to show kindness and patience.

Listening to a baby cry during a flight might be aggravating, but it’s nothing compared to the moans, groans, and eyerolls that the baby's parents must endure from other passengers when it happens. No matter what tips and tricks are used to try to soothe a little one’s temperament while 30,000 miles in the air, crying is almost inevitable. So, while having to ease their own child’s anxiety, moms and dads also must suffer being the pariah of the trip. What a nightmare.

Recently, one mom was apparently trying so hard to avoid upsetting her fellow flight members that she went above and beyond to essentially apologize ahead of time if her baby began to cry on its first flight. It was a gesture that, while thoughtful, had folks really feeling for how stressed that poor mom must be.

In a clip posted to his TikTok, one of the passengers—Elliot—explained that the mom handed out small care packages to those nearby.

“She’s already so busy and took the time to make these bags for everyone,” Elliot said, before panning the camera to reveal a Ziplock bag full of candy, along with a note that made him “want to cry.”

The note read: “It’s my first flight. I made a deal to be on my best behaviour—but I can’t make any guarantees. I might cry if I get scared or if my ears start to hurt. Here are some treats to make your flight enjoyable. Thank you for being patient with us. Have a great flight.”

Like Elliot, those who watched the video felt some ambivalence at the well intentioned act. Many felt remorse that she would feel the need to appease people in this way.

“This is so sweet but also … kind of breaks my heart that we live in a world in which parents feel the need to do that.”

“Because jerk people have shamed parents into believing that they need to apologize for their kids' absolutely normal behavior. What a gem of a mom.”

“You know that sweet mom worried about this trip so much.”

“That poor mom probably spent nights awake … nervous about that flight, thinking of ways to keep strangers happy.”

"That's a mom trying so hard."

Many rallied behind the mom, arguing that making others feel more comfortable with her child being on board was in no way her responsibility.

“No mom should be apologizing. Adults can control their emotions … babies not …. Hugging this mom from a distance.”

“Dear new parents: no you don’t have to do this. Your babies have the right to exist. We all know babies cry. We know you try your best.”

Luckily, there are just as many stories of fellow passengers being completely compassionate towards parents with small children—from simply choosing to throw on their headphones during a tantrum (instead of throwing one themselves) to going out of their way to comfort a baby (and taking the load of a parent in the process). These little acts of kindness make more of an impact than we probably realize. Perhaps if we incorporated more of this “it takes a village” mindset, flying could be a little bit more pleasant for everyone involved.

Fowl Language by Brian Gordon

Brian Gordon is a cartoonist. He's also a dad, which means he's got plenty of inspiration for the parenting comics he creates for his website, Fowl Language (not all of which actually feature profanity). He covers many topics, but it's his hilarious parenting comics that are resonating with parents everywhere.

"My comics are largely autobiographical," Gordon tells me. "I've got two kids who are 4 and 7, and often, what I'm writing happened as recently as that very same day."

Gordon shared 15 of his oh-so-real comics with us. They're all funny 'cause they're true.

Let's get started with his favorite, "Welcome to Parenting," which Gordon says sums up his comics pretty well. "Parenting can be such tedious drudgery," he says, "but if it wasn't also so incredibly rewarding there wouldn't be nearly so many people on the planet."

Truth.

I hope you enjoy these as much as I did.

1.

parenting, comics, humor

“Welcome to parenting."

via Fowl Language

All comics are shared here with Gordon's express permission. These comics are all posted on his website, in addition to his Facebook page. You can also find a "bonus" comic that goes with each one by clicking the "bonus" link. Original. Bonus.

2.

food allergies, fussy, picky eaters

Eating is never fundamental.

via Fowl Language

Original. Bonus.

3.

sleep deprivation, children, isolation

Adjusting the coping mechanism.

via Fowl Language

Original. Bonus.

4.

ducks, birds, fowl

I used to be cool.

via Fowl Language

Original. Bonus.

5.

naps, popcorn, movies

Naps happen.

via Fowl Language

Original. Bonus.

6.

politics, advice, education

Rolling with the punches.

via Fowl Language

Original. Bonus.

7.

emotions, therapy, emotional maturity

Tears happen.

via Fowl Language

Original. Bonus.

8.

insomnia, sleep deprivation, kids

It’s time to get up.

via Fowl Language

Original. Bonus.

9.

psychology, toddlers, family

The benefits of experience.

via Fowl Language

Original. Bonus.

10.

babies, diapers, responsibility

Is it gas?

via Fowl Language

Original. Bonus.

11.

sociology, grief counseling, dads

Everyone gets therapy, yea.

via Fowl Language

Original. Bonus.

12.

moms, dress up, costumes

Everyone has a role to play.

via Fowl Language

Original. Bonus.

13.

doctor, medicine, pediatrics

What’s up doc?

via Fowl Language

Original. Bonus.

14.

sports, competition, aggression

Everyone gets a participation ribbon.

via Fowl Language

Original. Bonus.

15.

theatrics, advice, Dan Gordon

Perception shifts.

via Fowl Language

Original. Bonus.

I love Gordon's comics so much because they're just about the reality of parenting — and they capture it perfectly.

There's no parenting advice, no judgment, just some humor about the common day-to-day realities that we all share.

When I ask him about the worst parenting advice he's ever received, Gordon relays this anecdote:

"I remember being an absolute sleep-deprived wreck, sitting outside a sandwich shop, wolfing down my lunch quickly beside my 1-month-old son, who was briefly resting his lungs between screaming fits.

A rather nosy woman walked up to me and said, all smugly, 'You should enjoy this time while they're easy.' It was the exact worst thing anyone could have said to me in that moment and I just wanted to curl up on the sidewalk and cry."

Who hasn't been on the receiving end of totally unneeded and unwanted advice? That's why Gordon's comics are so welcome: They offer up a space for us to all laugh about the common experiences we parents share.

Here's to Gordon for helping us chuckle (through the tears).


This article originally appeared nine years ago.

www.youtube.com

Quantum immortality?

Might we never really pass on into nothingness? Has the world ended many times before? Are we in fact doomed to spend eternity unknowingly jumping from one dimension to the next? According to one TikTok theory, the answer is yes. And it's blowing millions of minds worldwide.

Joli Moli (@joli.artist) is quite used to spooking and perplexing viewers with conspiracy theories and alternative hot takes. In her video titled "Apocalypse...again," Joli introduced the concept of Hugh Everett's quantum immortality. Fans of the Marvel "multiverse," are quite familiar with this concept, where instead of experiencing death, "your consciousness just gets transferred to a parallel universe where you survived," the TikTokker explained.




Joli admits that this might burst the bubbles of those seeking the "sweet relief" of a widespread apocalypse. "If the quantum immortality theory is correct," she deduced, "you're just going to wake up in a parallel universe with no memory of the fact that you just survived an apocalyptic event."

According to Joli, the only sort of clue or hint you'd get that you might have woken up in a parallel world would be "new Mandela effects." You know, the strange phenomenon where all of a sudden there are two completely opposing memories of historical events? Yeah, quantum theory says that if you remember Curious George having a tail, you probably died in another universe.

Driving her point home, Joli added: "What I'm basically implying here is that in our reality, apocalypses happen every day … after the inevitable apocalypse occurs, you're going to wake up the next day in a new reality, and the next thing you know, you're going to find yourself on Reddit talking about 'since when did Pizza Hut have two Ts?!' Arguing with people who are native of this new reality, talking about 'it's always had two Ts'."

I for one would never want to live in a Pizza Hutt universe. Blech.

Still not sold on the theory? Joli has further arguments: "You don't believe me? Okay, it's been about 65 million years since the asteroids allegedly took out the dinosaurs. ... So you mean to tell me that in the last 65 million years, no other asteroids have come through the neighborhood, taken us out? You think we're just that lucky, huh? No other super volcanic events in 65 million years? We're just out there in space just dodging asteroids by luck, right? Earth doesn't have a steering wheel."

Hmmm. That's a good point.

Joli concluded with the upbeat sentiment that "Earth is probably always being taken out, and our consciousness just keeps getting transferred to another parallel universe, and another one, and another one. For all you know, the apocalypse maybe already happened last night…"

So far, in this reality anyway, the video has 4.9 million views. And—as to be expected—the video left many feeling uneasy.

One user commented, "Ok, I'm actually kind of freaking out right now coz I'm not the conspiracy typa guy, but you're like eerily making sense."

A few resorted to sarcasm as a defense mechanism (understandably), like this Twitterer: "Thanks I was overdue for another existential crisis."

The discourse got so intense, people were reporting physical side effects from the stress. One person wrote: "The thought of never being able to actually die is extremely depressing, and it's giving me a headache."

Another added, "Bruh, I'm just done with this anxiety. My body [is] emotionally [and] physically TIREDDD."

One commenter, who clearly had their priorities straight, wrote: "You're over here talking about extinction level events and I'm having to check on the two Ts in Pizza Hut."

It wasn't all gloom and doom though. According to indy100, some saw the potential of eternal life as a comfort against the loss of loved ones, while others finally got to make sense of their "world-ending" dreams.

If you have watched the original TikTok and are filled with burning questions, Joli posted a follow up Q&A video. A small disclaimer: You might be left with even more questions.

Though we may never really know what awaits us on the other side, it is interesting to think that we might live in a multiverse with infinite second chances. And whether or not this theory floats your metaphysical boat, it's fun to contemplate on one of life's biggest mysteries.


This article originally appeared four years ago.