Her striking photos of her father capture the struggles and rewards of being a caregiver.
In late 2007, Safi Alia Shabaik noticed something strange about her father.
“He didn’t have the expressions he used to have,” Safi says. “His face wasn’t as reactive.”
Safi’s father was an immigrant from Egypt, and over the years, he’d carved out a successful life in America. Working as a professor of mechanical engineering, he was able to be a provider.
“He's been so generous with his family,” Safi says.
Safi and her father. Photo by Safi Alia Shabaik©, used with permission.
More than just a hard worker, though, Safi’s father was vibrant and funny. He often made Safi laugh.
But at some point, he started to change. Safi’s mom noticed this dampening in his personality. She worried that her husband, then 71, had suffered a stroke. They convinced him to see a doctor, and after undergoing a series of tests in early 2009, he received the news: He had Parkinson’s disease.
For several years, the symptoms were manageable. His limbs may have been stiff, his emotions flat, but he was still more or less himself. But then two years ago, things quickly got worse.
Soon it became clear: Safi would have to serve as her father’s caregiver.
The role of parent and child had flipped, and now, Safi had to bathe and feed her father and calm him in moments of delirium.
The experience has taken its toll. “It’s difficult to see the person you knew your whole life change and become somebody you don’t know because of a disease,” she says. “It’s emotionally, physically, and mentally exhausting.”
As she’s taken on a caregiving role, Safi has learned something important — in order to be a good caregiver, you need to take care of yourself too.
But it can be intimidating to know where to start. Here are five lessons she’s taken away from the caregiving process:
1. Caregivers must — absolutely must — take breaks.
Being a caregiver can be exhausting on every level. And as research shows, when we’re tired and stressed, we often make bad decisions.
“The reality of caregiving is so heavy; you have to take time for yourself or you’ll implode,” Safi says.
Photos by Safi Alia Shabaik©.
By taking breaks, caregivers can increase their resilience and patience, important traits when caring for another person. Sometimes the breaks can involve small tasks, like getting a haircut or running to the grocery store.
“Just being out of the house in a room with hustling and bustling people, a vision of life, becomes a luxurious reprieve from a dark state of mind,” Safi says.
A short vacation can also be huge. Longer breaks allow caregivers to return to their loved ones feeling refreshed and ready once again to help.
2. Bridge the divide with an aging parent using something that you — or both of you — love.
Safi is a professional photographer and has a talent for capturing the hidden, unadorned moments in American cities. “Photography,” she says, “is my window into understanding things.”
She began photographing her father partly for the same reason: to understand what the disease was doing to him and how it was affecting their relationship.
Her art, then, helped her to connect with her father in one of the most difficult moments of her life. It was an important step in taking care of herself.
Photo by Safi Alia Shabaik©.
By documenting this moment of profound change, she’s also come to reckon with some of the larger questions in life.
“I’ve come to a lot of realizations, not only about my relationship with my father,” she says, “but also about my relationship to the world — what I want for myself and what to me is a good quality of life.”
3. Remember that the disease and the person are not the same thing.
Caregivers can find themselves frustrated with the person they're caring for. That’s especially true if they're suffering from cognitive decline that often accompanies conditions like dementia. To avoid personal meltdowns, Safi found that an attitude adjustment helps.
“The things happening in front of you are not that person,” she says. “It’s the disease causing those things.”
It’s also important to remember a basic fact: We’re all human, and it’s not only OK but normal to feel frustrated in these kinds of situations.
This acknowledgment can help caregivers gain a sense of peace, which is a helpful state of mind while caring for an aging and temperamental parent.
4. Don’t forget to exercise. Seriously.
Exercise can seem like a special privilege, something to be done in one’s spare time — but spare time may be fleeting for caregivers
Exercise, however, can make a huge difference and is worth setting aside time for. Studies show that physical activity can reduce stress and depression. It can increase one’s energy levels and improve sleep.
All that is huge for caregivers. Caregiving requires a tremendous amount of focus, energy, and positive-mindedness. So while exercise might seem like a privilege, caregivers should consider it an investment in their care.
That’s been true for Safi. She finds time for different forms of exercise, like going to the gym and taking short morning walks.
5. And, most importantly, remember that you’re not alone.
Caregiving can be an isolating experience with so many hours spent at a parent’s bedside. But caregivers are not alone. When Safi talked with her friends, she quickly realized that many were going through similar experiences and had parents suffering from conditions such as Alzheimer’s.
“There is this new bond bringing us together,” she says.
And, in fact, Safi was able to reconnect with old friends who are also serving as caregivers — old friends she loves but hadn’t talked to for a long time. Sharing their stories, she learned, was profoundly healing.
“The best remedy is to share information and learn from each other,” she says.
Photo by Safi Alia Shabaik©.
Caregiving can be exhausting, but by taking all these steps, Safi has come away with a new understanding of her father, of herself, and of the vision she has for her life.
And she’s seen just how resilient all of us can be.
“When you’re thrown into a situation where you have to be the strong one, you take the role,” she says. “When everything is crumbling around you, somebody has to be strong.”
There's a reason why some people can perfectly copy accents, and others can't
Turns out, there's a neurodivergent link.
A woman in black long sleeve shirt stands in front of mirror.
Have you ever had that friend who goes on vacation for four days to London and comes back with a full-on Queen's English posh accent? "Oooh I left my brolly in the loo," they say, and you respond, "But you're from Colorado!" Well, there are reasons they (and many of us) do that, and usually it's on a pretty subconscious level.
It's called "accent mirroring," and it's actually quite common with people who are neurodivergent, particularly those with ADHD (Attention Deficit Hyperactivity Disorder). According Neurolaunch, the self-described "Free Mental Health Library," "Accent mirroring, also known as accent adaptation or phonetic convergence, is the tendency to unconsciously adopt the accent or speech patterns of those around us. This linguistic chameleon effect is not unique to individuals with ADHD, but it appears to be more pronounced and frequent in this population."
Essentially, when people have conversations, we're constantly "scanning" for information—not just the words we're absorbing, but the inflection and tone. "When we hear an accent, our brains automatically analyze and categorize the phonetic features, prosody, and intonation patterns," writes Neurolaunch. For most, this does result in copying the accent of the person with whom we're speaking. But those with ADHD might be more sensitive to auditory cues. This, "coupled with a reduced ability to filter out or inhibit the impulse to mimic…could potentially explain the increased tendency for accent mirroring."
While the article explains further research is needed, they distinctly state that, "Accent mirroring in individuals with ADHD often manifests as an unconscious mimicry of accents in social situations. This can range from subtle shifts in pronunciation to more noticeable changes in intonation and speech rhythm. For example, a person with ADHD might find themselves unconsciously adopting a Southern drawl when conversing with someone from Texas, even if they’ve never lived in the South themselves."
People are having their say online. On the subreddit r/ADHDWomen, a thread began: "Taking on accents is an ADHD thing?" The OP shares, "My whole life, I've picked up accents. I, myself, never noticed, but everyone around me would be like, 'Why are you talking like that??' It could be after I watched a show or movie with an accent or after I've traveled somewhere with a different accent than my 'normal.'
They continue, "Apparently, I pick it up fast, but it fades out slowly. Today... I'm scrolling Instagram, I watch a reel from a comedian couple (Darcy and Jeremy. IYKYK) about how Darcy (ADHD) picks up accents everywhere they go. It's called ADHD Mirroring??? And it's another way of masking."
(The OP is referring to Darcy Michaels and his husband Jeremy Baer, who are both touring comedians based in Canada.)
Hundreds of people on the Reddit thread alone seem to relate. One comments, "Omfg I've done this my whole life; I'll even pick up on the pauses/spaces when I'm talking to someone who is ESL—but English is my first language lol."
Sometimes, it can be a real issue for those around the chameleon. "I accidentally mimicked a waitress's weird laugh one time. As soon as she was out of earshot, my family started to reprimand me, but I was already like 'oh my god I don’t know why I did that, I feel so bad.'"
Many commenters on TikTok were shocked to find out this can be a sign of ADHD. One jokes, "Omg, yes, at a store the cashier was talking to me and she was French. She's like 'Oh are you French too? No, I'm not lol. I'm very east coast Canada."
And some people just embrace it and make it work for them. "I mirror their words or phrase! I’m 30. I realized I start calling everyone sweetie cause my manager does & I work at coffee shop."