He has ALS. He can no longer speak. And he needs you to listen to him talk about it.
ALS took his ability to move. So he started a movement.
ALS doesn't strike with a terrifying blow. It is a gradual, creeping illness. A thousand tiny cuts that slowly add up.
For Hiro Fujita, amyotrophic lateral sclerosis started with his arms feeling heavy. Then his legs began to hurt and it became harder to climb stairs. He went to the doctor almost as a precaution, expecting to be told it was nothing serious.
Instead, on Nov. 26, 2010, Hiro was diagnosed with ALS. It is the same devastating disease suffered by astrophysicist Stephen Hawking. Hawking has lived 50 years with ALS. Hiro was told he could expect to live three to five years at most before the disease attacking his motor neurons shut down his body completely.
By 2012, ALS was taking hold of Hiro's body. He had trouble lifting his arms. He broke his front teeth after tripping over nothing. Getting up from the couch became a question of if rather than when.
As his body slowly stopped being able to move, Hiro's mind was racing. He had to do something. It was time to start a movement and find a cure.
In late 2012, Hiro launched his foundation, End ALS, with two very simple goals: (1) Make ALS famous and find a cure and (2) change government policy so people living with ALS can affordably access technology that lets them live more comfortable lives.
An End ALS supporter wears her shirt proudly. All proceeds from shirt sales benefit the organization and its work toward a cure for ALS. Image by Hiro Fujita/End ALS, used with permission.
Over the last four years, Hiro has worked nonstop toward those goals. He's built a movement, spoken at conferences, written a book, and done the Ice Bucket Challenge.
Hiro with End ALS supporters in 2015. Image by Hiro Fujita/End ALS, used with permission.
He's done all of this while still working as an planning director at a Tokyo ad agency — thanks in large part to technological advances helping people with ALS live more normal lives. In an interview with Facebook last year, he talked about one innovation in particular:
"I use Tobii eye tracking software so I can control my computer cursor with my eyes. Japan's insurance doesn't cover it unless you can only move your eyes, but every person in need deserves it. ... It enables me to work on END ALS. It also lets me access Facebook, which is my main way to connect and hang with friends. It is a way for me to live my pre-ALS life through others. It can be painful to see what you’re missing out on, but it's comforting it still exists. Not to mention all of the long and short 'stay strong' messages."
"I am 99% grateful for all that has happened in my life. But 1% angry."
That's the most poignant quote from Hiro's very popular talk at TEDx Tokyo in 2014. A year earlier, he'd had a tracheotomy and lost his voice. No matter. He spoke anyway, using text-to-voice software. He plans to keep speaking. However he can. As long as he can. As he says in his Facebook story:
"I can no longer speak, but it does not mean I am giving up. My friends give me strength and I will keep fighting. For myself. For others. For a cure. My voice is louder now that ALS took it away."
Watch Hiro's presentation at TEDx Tokyo:
There's a reason why some people can perfectly copy accents, and others can't
Turns out, there's a neurodivergent link.
A woman in black long sleeve shirt stands in front of mirror.
Have you ever had that friend who goes on vacation for four days to London and comes back with a full-on Queen's English posh accent? "Oooh I left my brolly in the loo," they say, and you respond, "But you're from Colorado!" Well, there are reasons they (and many of us) do that, and usually it's on a pretty subconscious level.
It's called "accent mirroring," and it's actually quite common with people who are neurodivergent, particularly those with ADHD (Attention Deficit Hyperactivity Disorder). According Neurolaunch, the self-described "Free Mental Health Library," "Accent mirroring, also known as accent adaptation or phonetic convergence, is the tendency to unconsciously adopt the accent or speech patterns of those around us. This linguistic chameleon effect is not unique to individuals with ADHD, but it appears to be more pronounced and frequent in this population."
Essentially, when people have conversations, we're constantly "scanning" for information—not just the words we're absorbing, but the inflection and tone. "When we hear an accent, our brains automatically analyze and categorize the phonetic features, prosody, and intonation patterns," writes Neurolaunch. For most, this does result in copying the accent of the person with whom we're speaking. But those with ADHD might be more sensitive to auditory cues. This, "coupled with a reduced ability to filter out or inhibit the impulse to mimic…could potentially explain the increased tendency for accent mirroring."
While the article explains further research is needed, they distinctly state that, "Accent mirroring in individuals with ADHD often manifests as an unconscious mimicry of accents in social situations. This can range from subtle shifts in pronunciation to more noticeable changes in intonation and speech rhythm. For example, a person with ADHD might find themselves unconsciously adopting a Southern drawl when conversing with someone from Texas, even if they’ve never lived in the South themselves."
People are having their say online. On the subreddit r/ADHDWomen, a thread began: "Taking on accents is an ADHD thing?" The OP shares, "My whole life, I've picked up accents. I, myself, never noticed, but everyone around me would be like, 'Why are you talking like that??' It could be after I watched a show or movie with an accent or after I've traveled somewhere with a different accent than my 'normal.'
They continue, "Apparently, I pick it up fast, but it fades out slowly. Today... I'm scrolling Instagram, I watch a reel from a comedian couple (Darcy and Jeremy. IYKYK) about how Darcy (ADHD) picks up accents everywhere they go. It's called ADHD Mirroring??? And it's another way of masking."
(The OP is referring to Darcy Michaels and his husband Jeremy Baer, who are both touring comedians based in Canada.)
Hundreds of people on the Reddit thread alone seem to relate. One comments, "Omfg I've done this my whole life; I'll even pick up on the pauses/spaces when I'm talking to someone who is ESL—but English is my first language lol."
Sometimes, it can be a real issue for those around the chameleon. "I accidentally mimicked a waitress's weird laugh one time. As soon as she was out of earshot, my family started to reprimand me, but I was already like 'oh my god I don’t know why I did that, I feel so bad.'"
Many commenters on TikTok were shocked to find out this can be a sign of ADHD. One jokes, "Omg, yes, at a store the cashier was talking to me and she was French. She's like 'Oh are you French too? No, I'm not lol. I'm very east coast Canada."
And some people just embrace it and make it work for them. "I mirror their words or phrase! I’m 30. I realized I start calling everyone sweetie cause my manager does & I work at coffee shop."