He made an app to help himself and people like him with panic attacks.
The next time you're on the verge of a panic attack, just give your phone to a stranger, and the Emergency Chat app can instruct them how to help.
Please note: This piece was written using identity-first language, which is sometimes preferred by people with autism and other conditions. You can read more here about the differences between identity-first and people-first language.
Have you ever felt totally overwhelmed by everything around you and just needed the world to stop for a moment?
Hey, it happens to the best of us.
GIF from "Community."
But for many people who fall on the spectrum of autism, these kinds of experiences can be all too common.
Autism spectrum disorder (ASD) refers to a range of neuro-atypical conditions typically characterized by impairments or difficulties in social, developmental, and occupational behaviors.
Autistic people often have to work extra hard to interpret social cues and communicate with others, which, well, can be really frustrating.
Think of your own worst memory of the stress caused by miscommunication. Then imagine pretty much every single social interaction you have being just like that — totally outside your internal comfort zone.
GIF from "Suburgatory."
You can see how easy it can be for an autistic person to be overcome by the sensory overload surrounding them every day from normal human interaction and communication alone.
People have different ways of responding to stress, such as panic attacks, a loss of speech, or an inability to move. For autistic people whose behavioral patterns are already considered atypical, these signs might be even harder to identify.
While it's nice when people try to help in those moments, sometimes their questions make things worse.
Especially when you can't give them the answers they need to help you.
Sometimes, when you're stressed out, the absolute last thing you need is for someone to ask you how they can help. It's a nice gesture, of course, but when you've reached a certain point in your panic attack, you probably don't have the brainpower left to articulate your needs.
And sometimes — particularly for autistic people — you actually, literally, can't talk.
It's not that autistic people are trying to be difficult. It's not that they're being stubborn or prideful or refusing help. When your body is too overwhelmed with stress and adrenaline, sometimes you just cannot fulfill the functions someone is asking of you.
Even if you really, really want to.
That's why Jeroen De Busser created the Emergency Chat app — for those times when verbal communication is just not an option.
Jeroen is an autistic computer science student. He shared with me by email his memory of a particularly harrowing meltdown in which he went completely nonverbal.
The situation was further exacerbated by the presence of his friends, who despite their best intentions, did not know how best to help him — and of course, he was unable to tell them himself, which made everything even more frustrating.
GIF from "Community."
This experience inspired Jeroen to create Emergency Chat, a text-based app that displays personalized instructions on how to assist or handle an individual during a meltdown or panic attack, instead of wasting precious time in trying to parse through verbal communication. The app is currently available for Android phones, but we're told that an iOS version is in the works. Update 8/10/15:An iOS version is now available as well!
Here's what Emergency Chat looks like:
All you need to do is hand your phone to someone, and the app will tell them how to best help.
Here's how Jeroen describes the user interface:
"It has a base text that explains to the person you gave your phone to that you can't use speech and want to use this app to communicate.
Both the title and text can be adjusted in the settings to be whatever you want the person you give your phone to to know."
The app then provides a bare-bones chat interface, that lets you communicate with the people trying to help:
Although the default screen is set for autistic people, it can be customized for any number of physical, mental, or emotional needs.
While most of the Emergency Chat's 500+ users have relied on its default functionality for autism, one savvy user has customized the app to help with their tracheostomy, in case there is ever a problem:
The best way to help one another is to listen, and things like Emergency Chat improve communication for everyone.
I know that deep within our hearts of hearts we're all good people, and we genuinely want to help each other. But I also know that even when we mean well, we need to be sure that we're helping people on their own terms, the way they want and need to be helped.
This is particularly true when it comes to autistic people. Just because they function differently from the majority of people doesn't mean they don't function at all.
What an app like Emergency Chat does is give autistic people, or people with PTSD, or people with tracheostomies, and so on, control over the way the world around them tries to help them function when they lose their ability to speak. It saves them the stress and anxiety of wondering what will happen to them, whether they're with friends or in a strange environment, and it ensures that they can ask for — and receive — the help they need.
In short — it's a win for everyone involved.
GIF from "Community."
There's a reason why some people can perfectly copy accents, and others can't
Turns out, there's a neurodivergent link.
A woman in black long sleeve shirt stands in front of mirror.
Have you ever had that friend who goes on vacation for four days to London and comes back with a full-on Queen's English posh accent? "Oooh I left my brolly in the loo," they say, and you respond, "But you're from Colorado!" Well, there are reasons they (and many of us) do that, and usually it's on a pretty subconscious level.
It's called "accent mirroring," and it's actually quite common with people who are neurodivergent, particularly those with ADHD (Attention Deficit Hyperactivity Disorder). According Neurolaunch, the self-described "Free Mental Health Library," "Accent mirroring, also known as accent adaptation or phonetic convergence, is the tendency to unconsciously adopt the accent or speech patterns of those around us. This linguistic chameleon effect is not unique to individuals with ADHD, but it appears to be more pronounced and frequent in this population."
Essentially, when people have conversations, we're constantly "scanning" for information—not just the words we're absorbing, but the inflection and tone. "When we hear an accent, our brains automatically analyze and categorize the phonetic features, prosody, and intonation patterns," writes Neurolaunch. For most, this does result in copying the accent of the person with whom we're speaking. But those with ADHD might be more sensitive to auditory cues. This, "coupled with a reduced ability to filter out or inhibit the impulse to mimic…could potentially explain the increased tendency for accent mirroring."
While the article explains further research is needed, they distinctly state that, "Accent mirroring in individuals with ADHD often manifests as an unconscious mimicry of accents in social situations. This can range from subtle shifts in pronunciation to more noticeable changes in intonation and speech rhythm. For example, a person with ADHD might find themselves unconsciously adopting a Southern drawl when conversing with someone from Texas, even if they’ve never lived in the South themselves."
People are having their say online. On the subreddit r/ADHDWomen, a thread began: "Taking on accents is an ADHD thing?" The OP shares, "My whole life, I've picked up accents. I, myself, never noticed, but everyone around me would be like, 'Why are you talking like that??' It could be after I watched a show or movie with an accent or after I've traveled somewhere with a different accent than my 'normal.'
They continue, "Apparently, I pick it up fast, but it fades out slowly. Today... I'm scrolling Instagram, I watch a reel from a comedian couple (Darcy and Jeremy. IYKYK) about how Darcy (ADHD) picks up accents everywhere they go. It's called ADHD Mirroring??? And it's another way of masking."
(The OP is referring to Darcy Michaels and his husband Jeremy Baer, who are both touring comedians based in Canada.)
Hundreds of people on the Reddit thread alone seem to relate. One comments, "Omfg I've done this my whole life; I'll even pick up on the pauses/spaces when I'm talking to someone who is ESL—but English is my first language lol."
Sometimes, it can be a real issue for those around the chameleon. "I accidentally mimicked a waitress's weird laugh one time. As soon as she was out of earshot, my family started to reprimand me, but I was already like 'oh my god I don’t know why I did that, I feel so bad.'"
Many commenters on TikTok were shocked to find out this can be a sign of ADHD. One jokes, "Omg, yes, at a store the cashier was talking to me and she was French. She's like 'Oh are you French too? No, I'm not lol. I'm very east coast Canada."
And some people just embrace it and make it work for them. "I mirror their words or phrase! I’m 30. I realized I start calling everyone sweetie cause my manager does & I work at coffee shop."