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Family

A musician's decades-long battle with the fear of inheriting his dad's incurable disease.

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Muscular Dystrophy Association

There are certain moments in our lives that are too important not to share with the people we love.

Singer-songwriter Eric Hutchinson is having one of those moments.

Photo by Ralph Arvesen/Flickr.

Hutchinson and his band recently embarked on a tour to promote his new album, which he was proud to have independently produced. They are set to perform in Hutchinson's home state of Maryland at Merriweather Post Pavilion, an over 19,000-seat outdoor amphitheater that has hosted some of the most famed musicians in modern history.

This is one show Hutchinson doesn't want his family to miss. And he's especially excited for his dad to see him on the historic stage. But getting him there requires more than a VIP pass.

Before Hutchinson was big enough to pick up a guitar, his dad was diagnosed with an adult-onset form of muscular dystrophy (MD).

Photo from Eric Hutchinson, used with permission.

In the decades that followed, the disease progressively took away his father's control of his own body.

Though Hutchinson was too young to fully grasp the situation at the time, as his father's condition progressed, a frightening picture came slowly into focus.

"I don’t remember when I first found out about my dad’s disease, but I just knew that something was different," he said. "But the older I got, the more I understood, and the more I worried."

Then, in college, he learned more about MD that gave him concern for his own future.

Most muscular dystrophies are genetic. Hutchinson had a 50% chance of inheriting the gene flaw that caused his father’s MD.

"When am I going to wake up and feel something?" he wondered. "When my hands were tired, I worried that they were symptoms."

And as his creative interests became a full-time music career, he had a hard time facing the possibility that it could be taken away so prematurely.


"I’m a musician, and I rely on my hands to perform," he said. "So it wasn't just, 'Am I going to lose the ability to handle my day-to-day.' It was also, 'Am I going to lose the ability to do my job?'"

As his motor skills deteriorated, Hutchinson’s father had to let go of a lot of his passions. But he never stopped challenging himself.

“To my dad's amazing credit, he was always trying to do as much as possible and not allow it to limit him,” said Hutchinson.

Photo from Eric Hutchinson, used with permission.

When it would have been easy to withdraw, his dad went headfirst into parts unknown. MD made his woodworking difficult and dangerous, but he could still use a computer. So he earned a master’s degree and started a new career in web design.

Though he could no longer hold a guitar chord, he still had a voice, so he joined his synagogue choir. And, says Hutchinson, he walked for as long as his body would allow, falling often, but getting up just as many times.

While his father’s illness started as a fearful shadow to run from, his chosen life gave Hutchinson the courage to get tested.

In the winter of 2015, the day before he began recording his new album, Hutchinson met with a neurologist to give blood samples for the test. In a matter of weeks, he’d finally have the answer he’d been avoiding.

“I found my mind drifting while recording,” Hutchinson wrote in a personal essay once his work in the studio was done. “The sessions were colored by the anxiety that at any moment the doctor could be calling with results that could change my life.”

But, like his father, he chose to persevere. “I put one foot in front of the other, channeled the emotion into the songs, and kept talking to my therapist who helped me navigate it all. Slowly, I got stronger.”

Photo from Eric Hutchinson, used with permission.

Two days after he finished recording his album, he got a call from his doctor. Hutchinson tested negative for the genetic mutation for MD. But what he thought would be some of the most relieving news of his life turned out to be more bittersweet.

"I expected to have this celebratory, washing over me with elation. Of course it was a relief, but MD was still a part of my family, so I had a lot of complicated feelings around it."

For Hutchinson, an end to his fear of MD marked the beginning of a new mission to support the MD community. He's starting by simply talking about the disease.

This is something new for him, as his family tended to avoid open conversation about MD.

"It was like a secret I had to keep, which felt very isolating. So I’m proud of the fact that we’re having this conversation right now," he said. "Being able to talk about it takes away some of the fear. I can look at it more clinically and understand it for what it is."

And with his upcoming tour, he’s inviting his fans into the conversation through his music and a heartfelt open letter that speaks to his personal journey.

Photo by Ralph Arvesen/Flickr.

Hutchinson joins a long list of entertainers in that effort, dating back to 1951 with Jerry Lewis and Dean Martin’s first televised appeal for viewers to support the Muscular Dystrophy Association on “The Colgate Comedy Hour.”

While a cure is yet to be discovered, MD research has led to potentially game-changing developments.

Among them are advancements in physical therapy, experimental drugs that could help control MD symptoms and gene editing using revolutionary CRISPR technology.

Image by Ernesto del Aguila III, NHGRI/Wikimedia Commons.

We can see the value of all that work in recent stories like those of 18-year-old Latondra Chappell, a teen with MD who worked hard in physical therapy to get out of her wheelchair and walk the stage at graduation; 23-year-old Jon Piacentino, an aspiring scientist who has benefited hugely from experimental MD drug treatment; and 14-year-old Devin Argall, who’s participating in an MD drug clinical trial and was named a "goodwill ambassador" in the state of Wisconsin for his advocacy.

For the first time in years, Hutchinson feels he's on the right emotional bearing, and he wants to spread good along the way.

Connecting with people through music is one way he wants to do that. And if he ever veers off course, he knows just where to look to get back on track:

"I reflect on my dad. I got to see his resolve and endless determination up close. He fell, but he got up. Now I fall, but I get up."

As for the big show in Maryland, Hutchinson and his manager were making door-to-door arrangements and ensuring there was wheelchair access every step of the way.

Because beyond his son's music success, hearing his newfound voice on MD — and on such a massive stage — would be too proud a moment for Hutchinson's dad to miss.

Family

Dad camping with his kids shared the handwritten note left on his car from a fellow camper

More of this, please.

Photo credit: Canva, Note image via RCampR6/Reddit

A dad got a sweet note from a fellow father after camping with his kids.

One of the hardest parts of being a parent is never being sure whether you're doing a good job or totally bombing it. If you're conscientious enough to even wonder if you're a good parent, you probably are, but parenting entails a million little choices and interactions, and there's always a lingering voice in your head saying, "What if you're really screwing this whole thing up?"

Reassurance and encouragement are always appreciated by parents, but not always received, which is why a note from one camping dad to another has people celebrating the kindness of anonymous strangers.

"You are killing it as a dad."

Someone on Yosemite Reddit thread shared a photo of a handwritten note with the caption, "To the man who left this thoughtful note on my windshield at Lower Pines Campground this weekend, I extend my heartfelt gratitude; your acknowledgment of my efforts to be a good father means a great deal to me."


Windshield Note.
byu/RCampR6 inYosemite

The note reads:

"Bro,

I camped in the spot behind you last night. Let me just say, you are killing it as a dad. First off, I watched your wife guide you in as you backed up your trailer and nailed it on the first try without any yelling. Then your kids unloaded from the truck and were mild-mannered and well behaved. You told stories around the campfire and I had the pleasure of listening to the sounds of giggles and laughter.

From one dad to another, you are killing it. Keep it up.

P.S. Whatever you cooked for dinner smelled delicious!"

How often do we share these thoughts with strangers, even if we have them? And who wouldn't love to get a surprise bit of praise with specific examples of things we did right?

Everyone needs to hear a compliment once in a while.

So many people found the note to be a breath of fresh air and a good reminder to compliment people when we feel the urge:

"That would make any daddy's eyes water."

"It’s always nice, as a guy, to get a compliment."

"I complimented a guy's glasses at work (I'm also a guy, and btw they were really cool glasses, I wasn't just being nice) and now he keeps trying to tell me where he got his glasses and how I should get some. But I'm just having to be polite because I already have glasses and I'm not in the market. I finally had to tell him I'm not going to buy them lmao I just like them on him.

Made me feel like that's the first compliment he's had in years because he can't stop talking about it. Also I mainly liked the glasses because I think he's cute but he really thinks it's just the glasses haha jokes on him that cute bastard."

via GIPHY

"I was in the store with my wife and one of our 'adopted nephews' yesterday (we’re close friends with his parents and we’ve known him and his brother since they were newborns and 2yo, respectively). A woman came up to me at checkout while my wife was running out to the car and said 'I’m not sure what your family relationship is here, but I just have to tell you how nice and refreshing it is to hear all the laughter and joy from the 3 of you. You both seem like such a good influence on him and it warms my heart.' It’s such a small thing but as a dude, I can’t remember the last time someone gave me a compliment in public and it made my freaking day."

"10/10 letter. The and not yelling part gave me a good chuckle lol."

"We need so much more of men getting such heartfelt and sincere compliments. Thanks for sharing. ❤️"

"I’ve never considered leaving a note, but when I see a harmonious family with good parenting, it’s healing for me. My childhood was awful."

"Such an awesome compliment! Even though I don't have children myself, I like to remind my friends too that they're doing great & it brings them happy tears."

via GIPHY

"This made me cry. I love that you are getting your 'flowers.' My dad sucked, I’m so glad you are one of the good ones."

"This made me cry too. It’s so hard to be a human. Let alone a parent. Getting a good job sticker every now and then really means a lot these days."

"I'm a big bearded guy and I would cry if I got this note. More people like this, please."

The best part of this story is that no one knows who the dad who wrote the note is, not even the dad who shared it. It wasn't written for clout or notoriety, it wasn't to get attention or make himself look good. No name or signature, just an anonymous act of kindness to uplift a stranger whether he needed it or not.

We all need to hear or read kind things said about us, and sometimes it means even more coming from an anonymous stranger who has nothing to gain by sharing. A good reminder to share it when you feel it—you never know how many people you may move and inspire.

This article originally appeared last year.

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Science

Eye-opening video shows why 80 percent of Americans live east of this line

You'll never see the U.S. the same again.

via YouTube/RealLifeLore

There's a big change at the 98th meridian.

Have you ever wondered why the eastern half of the United States is densely populated while everything west of Omaha, save for a few metro areas, is no man’s land?

Most people would assume that it’s because people first settled in the east and moved west. Or, they may believe it’s because of the vast desert that takes up most of the southwest. Those are some decent reasons, but it’s a much more complicated issue than you'd imagine.

A 20-minute video by RealLifeLore explains how topography and rainfall have created what appears to be a straight line down the middle of the country on the 98th meridian that dictates population density. Eighty percent of Americans live on the east side of the line and just twenty percent to the west.

RealLifeLore is a YouTube channel that focuses on geography and topography created by Joseph Pisenti.

In the video, we see that several large cities border the American frontier—San Antonio, Austin, Fort Worth, Oklahoma City, Wichita, Omaha, Lincoln, Sioux Falls, and Fargo, as well as Winnipeg up in Canada. To the west of those cities? Not much until you reach western California and the Pacific Northwest.

Why? Watch:

The major reason why the population drastically changes is rainfall. It rains much more on the east side of the line versus the west. The reason for the drastic change in rainfall is that the Rocky Mountains create a colossal wall known as a rain shadow that prevents moisture from passing from the Pacific Ocean. This has created a large swath of dry land that’s not conducive to larger populations.

Though the eastern U.S. is more densely populated, it doesn't mean the west doesn't sometimes feel crowded, especially if you live in Los Angeles County. What side of the line are you on?

This article originally appeared three years ago.

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Joy

Woman who lives on a cruise ship shares the hardest part about her perfect life

She's a little afraid to leave her cabin.

via Christine Kesteloo/TikTok and Cagri Gurbuz/Pexels

Christine Kesteloo has one big problem living on a cruise ship.

A lot of folks would love to trade lives with Christine Kesteloo. Her husband is the Chief Engineer on a cruise ship, so she gets to live on the boat pretty much for free as the “wife on board.” For Christine, life is a lot like living on a permanent vacation.

“I live on a cruise ship for half the year with my husband, and it's often as glamorous as it sounds,” she told Insider. “After all, I don't cook, clean, make my bed, do laundry or pay for food.“

Living an all-inclusive lifestyle seems like paradise, but it has some drawbacks. Having access to all-you-can-eat food all day long can really have an effect on one’s waistline. Kesteloo admits that living on a cruise ship takes a lot of self-discipline because the temptation is always right under her nose.

“One of the hardest things about living on a cruise ship is that I know right now, if I just leave my cabin, I can go and have cookies, pizza, a shake, I could have anything I wanted, and I want it, I absolutely want it,” she said in a TikTok video that received over 400,000 views.

@dutchworld_americangirl

The hardest part about living on a cruise ship is that I am surrounded by free food all of the time anything I want I just had lunch but it’s 2 o’clock in my body tells me it’s either cookie time or time for a hamburger. The hardest part is telling myself not to eat. #hardestpart #cruiseship #livingatsea #koningsdam #weliveonacruiseship #cruisefoodie #foodtok #itsaproblem #halcruises #hollandamericaline

“I am laying here. It is 2 pm. I had a salad for lunch, I had some fresh fruit, but that didn’t fill me up,” she continued. “Right now, all I can think about is eating a burger with some French fries and some mayonnaise.”

“And that, folks, is the absolute hardest part about living on a cruise ship,” she said. “I am surrounded by food all the time.”

She added, "The hardest part is telling myself not to eat.”

Kesteloo’s trouble is a common problem among people on cruise ships. A study by Admiral Travel Insurance found that over 60% of people who go on a week-long cruise anticipate gaining weight. Seventeen percent of people say they gain 2 to 3 pounds on a cruise, while 14% say they gain 4 to 5 pounds.

Other estimates show that the average cruiser will put on 5 to 10 pounds on a weeklong cruise. Imagine living on a cruise ship for half the year, like Kesteloo. She could quickly put on 100 pounds a year if she's not careful.

"I’d be huge if I lived there. I would feel like I’m on a constant vacation, and who diets on vacation?" Theresa Gramelsapcker-Wilson wrote in the comments.

"This is my main reason why I couldn’t do this HHAHAHAHAHAA," Cara Mia added.

"I never thought about those who actually live on a cruise ship. I would be 500 pounds," Lucky Penny2468 said.

Kesteloo’s battle with temptation shows that in every life, a little rain must fall. Nobody ever truly has it perfect. Kesteloo seems to be living the perfect life on board a cruise ship, but she still has to fight temptation every moment of the day or make good use of the ship’s gym facilities. But, obviously, having access to too much food is far better than having too little.


This article originally appeared two years ago.

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Education

Global robotics community FIRST prepares students to thrive as adults in a rapidly changing world

via FIRST

A FIRST mentor encourages a student.

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There’s no shortage of companies, governments, and organizations around the world searching for talented workers with a deep knowledge of science, technology, engineering and math (STEM). The demand is providing a clear pathway to rewarding, world-changing, and well-paying STEM careers for many young people.

However, some students are missing these incredible opportunities because they haven’t envisioned themselves in STEM or encountered any mentors to show them a pathway for success.

FIRST is a global nonprofit that provides robotics-based programs and mentorship from adult volunteers such as educators and STEM professionals to students ages 4 to 18. FIRST is a mission-based robotics community that aims to get kids excited about STEM and allows them to build these talents, along with critical life skills such as communication and leadership, through team-based robotics competitions.

FIRST has a proven impact in guiding young people into STEM careers, all while having fun and making useful connections.

Teams of people huggingFIRST Championshipvia FIRST

Nearly 700,000 students and 320,000 adult mentors, coaches, judges, and volunteers participate in the nonprofit community year over year, and the transformational power of FIRST programs was featured in the 2022 Disney+ documentaryMore Than Robots. Students develop problem-solving skills and learn confidence, cooperation, empathy, and resilience—skills that will serve them well in their future careers.

Fazlul “Fuzz” Zubair, systems engineering department manager at Raytheon Technologies, an American multinational aerospace and defense conglomerate, mentors FIRST Team 4201, The Vitruvian Bots, in Los Angeles.

Zubair has hired 15 Raytheon Technologies employees from his FIRST team, creating a FIRST-to-work pipeline. Better yet, many of the new employees then give back to FIRST by mentoring their own teams. Zubair’s dedication to mentorship has created a cycle of positivity that continues to grow.

“Here, at FIRST, it’s a sport where everyone can go pro. They can come out of this program, and they can get a good-paying job and contribute positively to society and solve the tough problems that we have,” Zubair told Upworthy.

“Raytheon Technologies understands this, so it supports students in the program and its employees who mentor. Through FIRST, we’ve created a pipeline of people who already know how to collaborate with engineers and when they come into our companies, they have a head start,” Zubair continued.

Wireless communications innovator Qualcomm Incorporated is another multinational company that supports FIRST. It has been hiring FIRST students because of their advanced skill sets since 2006.

“They’re working on robots and learning things like coding and critical thinking, but they also have 21st-century skills like teamwork and the ability to collaborate with students that come from diverse backgrounds. Those are all things that are important in the workplace,” Natalie Dusi, corporate social responsibility manager at Qualcomm Incorporated, told Upworthy.

As employees, FIRST students join the workforce with experience and vital collaboration skills. “They roll up their sleeves and start innovating right away. When FIRST students come into Qualcomm Incorporated, they are confident,” she added.

Zubair says that FIRST students are valuable, in part because they understand that failure is part of learning and innovation.

“Learning through failure is something that’s really hard to teach,” he said. “You must go through that process. I like to tell my students all the time, ‘I’d rather you fail on this robot than a billion-dollar satellite. Learn now, fail often, fail early.’”

For FIRST CEO Chris Moore, the opportunity to gain confidence in STEM is an important and deeply personal issue. When he was in middle school, a teacher dissuaded him from pursuing a career in technology and he believes it had lasting, negative effects on his career. “Even now, as someone with decades of experience leading youth-serving organizations, this STEM inferiority complex has stuck with me, and at times I still doubt my own STEM competency,” he told Upworthy. “The reality is, STEM is achievable and rewarding for everyone, no matter their gender, age, race, economic standing orientation nor any other factor.”

Statistics point to a high demand for STEM workers and a short supply, especially in the United States and especially among women, underserved, and underrepresented groups. FIRST provides young people from any background with the skills they need to succeed in their STEM studies and future careers. Notably, FIRST reached more than 20,300 youth in underserved communities during its 2019 season.

FIRST students are twice as likely to express interest in a STEM career than their peers.

FIRST understands the value of inspiring all students and does so by providing innovation grants to teams from underserved communities and developing strategic alliances with the Society of Hispanic Professional Engineers (SHPE), National Society of Black Engineers and Girls, Inc. (NSBE), and other like-minded organizations.

One of the lasting impacts FIRST has on students is an understanding that no matter who they are or where they come from, they can solve the world’s most pressing issues.

The theme for the 2022–2023 season is energy. Students will explore the essential role that energy plays in keeping the world moving forward, the possibilities that different energy sources unlock, and how we can all realize a brighter future through innovative ideas in energy generation, efficiency, and use.

Cooperation, empathy, and resilience are skills that last a lifetime and it’s never too early for a child to enjoy their benefits. Learn more about FIRST programs in your area and how you can become involved!

This article originally appeared three years ago.

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Education

You're probably not washing your bathroom towels often enough. Here's why.

That fresh and clean feeling might be getting muddied by dirty towels, and we don't even know it.

Photo credit: Canva

Towels might need a little more attention than we realize.

Bathrooms are weird, man. They’re where we go to get clean, and yet they are also breeding grounds for germs, bacteria and every other bit of grossness life has to offer. Seriously, why did we think putting showers and toilets in the same room was a good idea? Even the towels we use to dry off after a good scrubbing…how sanitary are those, really? Are we really washing them enough to prevent us from just rubbing dead skin cells, soap residue, yeasts, and other forms of gunk all over our freshly cleaned bodies?

Many, if not most of us probably throw our towels in the wash once a week. Which, assuming you’re showering daily, would mean after about seven uses. However, a good rule of thumb according to several scientists and laundry experts is to wash towels after every 3-4 uses. For those that only wash their towels once a month, or once a season, or even once a year…buckle up.

yellow and black cat showing tongue Photo by Juan Gomez on Unsplash

Why changing bath towels is important

Considering that our towels usually don’t show signs of contamination, this might seem like overkill. But what we aren’t seeing are the pathogens that get transferred onto the towel—by our skin, airborne fungi, and yes…bits of human waste…of the fecal sort. Here’s a kindly reminder to always put the seat lid down before flushing.

Interestingly enough, all of these invisible creepy crawlies create a microbial community that, according to a 2023 article in Scientific Reports, is unique from the ones that form on our clothes or bedsheets. And depending on what type of microbial community develops on them, dirty towels could put you at risk for contracting everything from athlete's foot to an eczema flare-up to pink eye or staph (MRSA), just to mention a few. Point being—it’s more than just potentially having a bathroom filled with smelly towels.

Other towel tips

Make sure your towel properly dries between uses

Even if you’re throwing the towel into the hamper to be cleaned, a good rule of thumb is to have it completely dry first in order to avoid funky odors. If your bathroom’s humidity lingers, it might be worth considering moving them to dry elsewhere.

Clean more often if…

…you’re dealing with sickness, a damaged skin barrier due to a rash or open cut, or shower multiple times a day.

pink and green plastic container Photo by engin akyurt on Unsplash

Wash towels the right way

Use a hot water setting and dry on high heat. Ideally, choose a detergent with enzymes to really break down the grime, and consider adding liquid bleach or laundry products with activated oxygen bleach. Obviously, if that doesn't agree with your skin, disregard. But perhaps vinegar is a gentler yet still effective substitute.

Consider skipping anything besides detergent and bleach

While things like fabric softener and scent beads give off a luxury feel, they can also form a lingering residue that only makes the towel more of a breeding ground for germs.

Don't forget to wash your washing machine

Yes, the very device used to remove the bio gunk from our fabrics can be spreading them when not properly sanitized. Every so often, run a cycle without clothes, using bleach or a special formula for cleaning washing machines.

Replace towel every 3 years, and choose wisely

One hundred percent linen towels are naturally moisture-wicking, meaning they dry much faster and are therefore less likely to breed bacteria between uses! But no matter which type of towel you go with, wash before use. Yes, it’s hard to say goodbye to that oh-so soft texture, but the chemicals used to create that texture aren’t always great for us anyway.

pile of cloth on white surface Photo by Mel Poole on Unsplash

What about other types of towels?

Some towels—like the ones we use for the gym or wiping down the kitchen—are exposed to even gnarlier environments, and require different protocols. Workout towels for instance, which basically get covered in sweat and then sit in a gym bag for hours, need to be cleaned after only one use.

Similarly, past research has found that dish towels house a substantial amount of coliform bacteria E. coli bacteria, which can lead to food poisoning. The fact that many of us simultaneously use a kitchen towel for wiping down surfaces, dishes, and our own hands, certainly doesn't help things. Luckily that same research also showed towels that were washed within three days had less E. coli than those that went more than four days without washing. So, wash kitchen towels at least as often as bath towels, but daily if you’re using them to wipe up spills. Also designate specific towels for specific purposes—one for drying dishes, one for hands, etc..

The bottom line

Of course, there might be environmental or financial reasons for not wanting to wash towels often. And many might continue on with their current laissez-faire routine and suffer no consequences. But this is a good reminder that the essential tools used in our everyday lives require some TLC to keep things running smoothly, and hygienically.

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