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Heroes

How a system of ropes and pulleys may change the lives of babies with Down syndrome.

When Grace Morgan smiles, everyone smiles.

Image via Upworthy/YouTube.

How could you not? She's almost 1, and her enthusiasm, curiosity, and zest for life are contagious.

And thanks to an innovative research project, Grace will get to interact with and explore her world like never before.

Grace was born with Down syndrome in April 2015.

Her parents, Liz and Matt Morgan, learned about her diagnosis after she was born. Their initial surprise quickly turned to worry and concerns about Grace's future. Physicians at the Down syndrome clinic at their local children's hospital told the Morgans they could expect Grace to do everything a typical child would, it would just take her twice as long.

But that response didn't fly with the Morgans.

"Why would we just accept the fact that they say 'Everything takes twice as long?'" Liz told Upworthy.

Image via Upworthy/YouTube.

Then the Morgans heard about a research project that could improve Grace's mobility — a huge deal for kids like her.

The man behind the study, Dr. Cole Galloway , is a physical therapy professor at the University of Delaware and founder of GoBabyGo. The program combines engineering, tech, and rehabilitation tools to provide real-world mobility and confidence to kids with disabilities. Galloway was looking for a baby younger than 9 months with Down syndrome and a family with enough time to supervise daily use of an innovative device. The Morgans were selected from a pool of applicants.

Galloway and his team recently set up a mobility harness system in the Morgan's home.

The 10-foot-by-10-foot rig is common in children's hospitals and clinics, but this is one of the first times a system like this is being used in a home environment.

Image via Upworthy/YouTube.

The harness, which is attached to a canopy and pulley system, allows Grace to remain upright, jump, bounce, and interact with her world in a way similar to that of her peers.

Since she's free to roam on the system, she can sway and twirl.

All GIFs via Upworthy/YouTube.

She can play with her parents and big brother.

And even charm the family dog.

For the Morgans and other families, mobility devices like this are life-changing.

The ability to move independently is more than just getting from one place to another. Children learn about their environment and develop cognitively and socially through locomotion. And for older children, the ability to get around and interact with peers is how friendships are formed.

The difference for Grace is "huge," Liz told Upworthy. Without the harness, Grace's world is limited to the toys or people directly in front of her.

But with the device, there's no stopping her.

"What a harness can do is just give a chance for Gracie to never experience anything less than her own independence," Galloway told Upworthy. "Her own self-guided life, liberty, and the pursuit of happiness." Adding, "But it's the pursuit of happiness."

Looks like Grace and her family have plenty to smile about.

See Grace take on the world in this heartwarming Upworthy Original.


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Cycle for Survival
Cycle for Survival
Sponsored

How can riding a bike help beat cancer? Just ask Reid Moritz, 10-year-old survivor and leader of his own “wolfpack”

Every year, Reid and his pack participate in Cycle for Survival to help raise money for the rare cancer research that’s helped him and so many others. You can too.

all photos courtesy of Reid Moritz

Together, let’s help fuel the next big breakthrough in cancer research

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There are many things that ten-year-old Reid Wolf Moritz loves. His family, making watches (yes, really), basketball, cars (especially Ferraris), collecting super, ultra-rare Pokémon cards…and putting the pedal to the medal at Cycle for Survival.

Cycle for Survival is the official rare cancer fundraising program of Memorial Sloan Kettering Cancer Center (MSK). One hundred percent of every dollar raised at Cycle for Survival events supports rare cancer research and lifesaving clinical trials at MSK.

At only two years old, Reid was diagnosed with pilocytic astrocytoma, a rare type of brain tumor.

Pediatric cancer research is severely underfunded. When standard treatments don't work, families rely on breakthrough clinical trials to give their children a real shot at long-term survival.

When Reid’s chemotherapy and brain surgery didn’t work, he was able to participate in one of MSK’s clinical trials, where he’s received some incredible results. “Memorial Sloan Kettering has done so much for me. It's just so nice how they did all this for me. They're just the best hospital ever,” Reid recalls.

And that’s why every year, you’ll find Reid with his team, aptly named Reid's Wolfpack, riding at Cycle for Survival. It’s just Reid’s way of paying it forward so that even more kids can have similar opportunities.

“I love sharing my story to inspire other kids to PERSEVERE, STAY STRONG and NEVER GIVE UP while also raising money for my amazing doctors and researchers to help other kids like me.”

Reid remembers the joy felt bouncing on his father’s shoulder and hearing the crowd cheer during his first Cycle for Survival ride. As he can attest, each fundraising event feels more like a party, with plenty of dancing, singing and celebrating.

Hoping to spread more of that positivity, Reid and his family started the Cycle for Survival team, Reid’s Wolfpack, which has raised close to $750,000 over the past eight years. All that money goes directly to Reid’s Neuro-Oncology team at Memorial Sloan Kettering.

In addition to cheering on participants and raising good vibes at Cycle for Survival events, Reid even designs some pretty epic looking merch—like basketball shorts, jerseys, and hoodies—to help raise money.

If you’re looking to help kids just like Reid, and have a ton of fun doing it, you’re in luck. Cycle for Survival events are held at Equinox locations nationwide, and welcome experienced riders and complete newbies alike. You can even join Reid and his Wolfpack in select cities!

And if cycling in any form isn’t your thing, a little donation really does go a long way.

Together, let’s help fuel the next big breakthrough in cancer research. Find out more information by checking out cycleforsurvival.org or filling out this interest form.

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Joy

They thought their son lived an isolated life. But when he died, friends showed up in droves.

Mats Steen's parents were shocked to learn their severely disabled son had lived a rich, independent life they knew nothing about.

Netflix/YouTube

Mats Steen lived a secret life that his family only discovered after he died.

Mats Steen was only 25 years old when he passed away, his body succumbing to the genetic disease that had slowly taken his mobility since childhood. He'd lived in a wheelchair since his early teens, and by his 20s, his physical abilities had deteriorated to the point of only being able to move his fingers. He could push buttons and use a mouse, and he spent nearly all of his waking hours playing video games in his parents' basement.

His family loved him and cared for him through it all, giving him as much of a normal life as they could. But they also lamented everything they knew he'd missed out on. "Our deepest sorrow lay in the fact that he would never experience friendships, love, or to make a difference in people's lives," Mats' father shares.

Mats left behind the password to a blog he kept. Not knowing if anyone would actually read it, his parents published the news of Mats' passing in a blog post, adding their email address in case anyone wanted to reach out.

Much to their surprise, messages began pouring in from around the world—not just with condolences, but with heartfelt stories from people who called Mats their friend.

The Steens soon discovered that their son had lived a much fuller life than they'd ever imagined—one that included all the things they always wished for him.

As his online life was revealed, the family learned that Mats began his days with a routine 30-minute sprint through the forest. He frequented cafes and pubs, chatting with strangers and flirting with women. He sat by campfires having heart-to-heart conversations. He made friends and enemies. He fought heroic battles. He supported people in times of need. He gave advice that people took. He experienced his first kiss.

And he did it all as "Ibelin," his handsome, muscular avatar in the online game World of Warcraft.

- YouTubewww.youtube.com

Mats' life is showcased in the documentary, "The Remarkable Life of Ibelin," in which his parents share the story of how they discovered their son's group of friends they didn't know he had.

People who've never played an open world roleplay game like World of Warcraft may wonder how real community can be built through it, but Mats' story proves it's possible. The friends he made through the game have shared the real influence he'd had on their real lives, from helping them with problems they were facing to empowering them to make positive changes in their relationships.

Though he never met them face-to-face, Mats' online friends say he made a significant impact on them.

A young woman Ibelin had connected with as a teenager—the one with whom he'd shared that first virtual kiss—shared that her parents had taken away her computer when they feared gaming was interfering with her studies. When she logged on at a local library, Mats gave her a letter he had written to give to her parents, encouraging them to talk with her about her gaming hobby and to work out a solution together that didn't require her to give it up completely. She printed it and gave it to them. Miraculously, it worked.

Another woman had been having a hard time connecting with her autistic son as a young adult. When she talked with Ibelin about her struggles, he suggested that she and her son start gaming together and connect in that way first. Eventually, that connection via the virtual world led to warmer in-person interactions between them—and a life-changing shift in their relationship.

"I don't think he was aware of the impact that he had done to a lot of people," the mother shared.

Mats interacted with the same online friends as Ibelin for years, going through the kinds of ups and downs all real friendships experience. He kept his physical condition a secret until close to the end of his life, when he finally opened up to another player who convinced him to share his reality with the others. Some traveled from other countries to attend his funeral, with one of them speaking on the group's behalf and a few of them serving as pallbearers. Those who knew Ibelin also held a memorial in-game at his virtual gravesite—a tradition that has spread beyond just his own guild.

Typically, we think of someone escaping the real world and spending hours a day playing video games as unhealthy, but for Mats, it was a lifeline. As Ibelin, Mats was able to have a level of independence and a rich social life that simply wasn't possible for him in the offline world—an uniquely modern phenomenon that technology and human creativity have made possible.

Mats' impact on his online community was real, and 10 years after his passing his impact is spreading even further.

Duchenne muscular dystrophy, the genetic disease that Mats lived with and ultimately died from, affects 300,000 boys worldwide. It only affects males and it has no cure. But CureDuchenne, a global nonprofit dedicated to funding and finding a cure, has partnered with Blizzard and World of Warcraft in Mats' honor. From now until January 7, 2025, World of Warcraft players can purchase a limited-edition pet fox named Reven ("fox" in Norwegian). The Reven Pack, which includes a transmog backpack and Reven’s Comfy Carrier, costs $20, with 100% of the purchase price being donated to CureDuchenne.

The Reven Pack on World of Warcraft—100% of purchase cost goes to the CureDuchenne foundation.World of Warcraft/CureDuchenne

“Mats Steen lived a life in World of Warcraft that he couldn’t in the real world as he fought Duchenne muscular dystrophy alongside his incredible family, who I’m proud to have met and fallen in love with,”said Holly Longdale, executive producer of World of Warcraft. “Working with CureDuchenne for our Charity Pet Program, in honor of Mats’ memory, allows us to harness the power of our phenomenal global community to bring meaningful impact to so many lives.”

You can learn more about Mats' story in the award-winning documentary, "The Remarkable Life of Ibelin," on Netflix and learn more about the CureDuchenne fundraising initiative with World of Warcraft here.

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Kids

Toddler's unbridled joy at seeing Target Christmas decor is pure holiday magic

He's in the "wow" phase 🥲


@vita.pasker/TikTok

May we all find something that makes us say "wow!" like this toddler.

It seems like even the most bah humbugiest of us are in the mood to be injected with a bit of Christmas cheer this year. And this video of a mom whisking her precious toddler through a holiday decor-filled Target can do just that.

Victoria Paskar had previously taken her son Ellis to Target when he was a newborn and unable to really understand or appreciate the festive hoopla happening all around him.

But this time, Ellis is a toddler. And in full toddler fashion, he is in complete and utter awe—and able to express it all in real time.

Paskar caught the whole adorable moment on camera as Ellis, from his shopping cart seat, kept shouting “Oh, wow! Wow!” in total amazement of the countless lit-up trees and aisle lines with elaborate decorations and colorful toys.

It’s just so magical and pure in every way. Truly the only thing that would have made it better would be “What’s This?” from Nightmare Before Christmas playing in the background.

Watch:


@vita.paskar This is when things start to get exciting 🥹 when they begin to understand! #fyp #christmas #target #toddler ♬ Rockin' Around The Christmas Tree - Brenda Lee

“Pov: your child’s second Christmas isn’t as a newborn anymore, but as a toddler,” Paskar wrote for her video’s caption, perfectly encapsulating that wonderful shift that happens when kids are old enough to take in the world around them, but young enough for even the littlest things to seem miraculous and exciting.

As that sense of wonder tends to begin waning around the age of six, it’s a fleeting moment worth cherishing. Other parents who watched the video certainly seemed to think so.

“Experiencing Christmas through your children's eyes is the BEST gift as parent can get!” one person wrote.

Another said, “My fave toddler phase is the ‘wow’ phase. They say ‘wow at everything!!”

Still another shared, “that’s my toddler too and I’m soaking it all up.”

As the holiday season approaches, let this heartwarming story serve as a reminder to try to see the world through a child’s eyes—inviting back in our own sense of wonder that turns even the littlest things into pure magic. It is, after all, part of what makes Christmas so special in the first place.

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Education

Why didn't people smile in old photographs? It wasn't just about the long exposure times.

People blame these serious expressions on how long they had to sit for a photo, but that's not the whole picture.

Public domain images

Photos from the 1800s were so serious.

If you've ever perused photographs from the 19th and early 20th century, you've likely noticed how serious everyone looked. If there's a hint of a smile at all, it's oh-so-slight, but more often than not, our ancestors looked like they were sitting for a sepia-toned mug shot or being held for ransom or something. Why didn't people smile in photographs? Was life just so hard back then that nobody smiled? Were dour, sour expressions just the norm?

Most often, people's serious faces in old photographs are blamed on the long exposure time of early cameras, and that's true. Taking a photo was not an instant event like it is now; people had to sit still for many minutes in the 1800s to have their photo taken.

Ever try holding a smile for only one full minute? It's surprisingly difficult and very quickly becomes unnatural. A smile is a quick reaction, not a constant state of expression. Even people we think of as "smiley" aren't toting around full-toothed smiles for minutes on end. When you had to be still for several minutes to get your photo taken, there was just no way you were going to hold a smile for that long.

But there are other reasons besides long exposure times that people didn't smile in early photographs.

1800s photographsWhy so serious? Public domain

The non-smiling precedent had already been set by centuries of painted portraits

The long exposure times for early photos may have contributed to serious facial expressions, but so did the painted portraits that came before them. Look at all of the portraits of famous people throughout history prior to cameras. Sitting to be painted took hours, so smiling was out of the question. Other than the smallest of lip curls like the Mona Lisa, people didn't smile for painted portraits, so why would people suddenly think it normal to flash their pearly whites (which were not at all pearly white back then) for a photographed one? It simply wasn't how it was done.

A smirk? Sometimes. A full-on smile? Practically never.

"Mona Lisa" by Leonardo da Vinci, painted in 1503Public domain

Smiling usually indicated that you were a fool or a drunkard

Our perceptions of smiling have changed dramatically since the 1800s. In explaining why smiling was considered taboo in portraits and early photos, art historian Nicholas Jeeves wrote in Public Domain Review:

"Smiling also has a large number of discrete cultural and historical significances, few of them in line with our modern perceptions of it being a physical signal of warmth, enjoyment, or indeed of happiness. By the 17th century in Europe it was a well-established fact that the only people who smiled broadly, in life and in art, were the poor, the lewd, the drunk, the innocent, and the entertainment […] Showing the teeth was for the upper classes a more-or-less formal breach of etiquette."

"Malle Babbe" by Frans Hals, sometime between 1640 and 1646Public domain

In other words, to the Western sensibility, smiling was seen as undignified. If a painter did put a smile on the subject of a portrait, it was a notable departure from the norm, a deliberate stylistic choice that conveyed something about the artist or the subject.

Even the artists who attempted it had less-than-ideal results. It turns out that smiling is such a lively, fleeting expression that the artistically static nature of painted portraits didn't lend itself well to showcasing it. Paintings that did have subjects smiling made them look weird or disturbing or drunk. Simply put, painting a genuine, natural smile didn't work well in portraits of old.

As a result, the perception that smiling was an indication of lewdness or impropriety stuck for quite a while, even after Kodak created snapshot cameras that didn't have the long exposure time problem. Even happy occasions had people nary a hint of joy in the photographs that documented them.

wedding party photoEven wedding party photos didn't appear to be joyful occasions.Wikimedia Commons

Then along came movies, which may have changed the whole picture

So how did we end up coming around to grinning ear to ear for photos? Interestingly enough, it may have been the advent of motion pictures that pushed us towards smiling being the norm.

Photos could have captured people's natural smiles earlier—we had the technology for taking instant photos—but culturally, smiling wasn't widely favored for photos until the 1920s. One theory about that timing is that the explosion of movies enabled us to see emotions of all kinds playing out on screen, documenting the fleeting expressions that portraits had failed to capture. Culturally, it became normalized to capture, display and see all kind of emotions on people's faces. As we got more used to that, photo portraits began portraying people in a range of expression rather than trying to create a neutral image of a person's face.

Changing our own perceptions of old photo portraits to view them as neutral rather than grumpy or serious can help us remember that people back then were not a bunch of sourpusses, but people who experienced as wide a range of emotion as we do, including joy and mirth. Unfortunately, we just rarely get to see them in that state before the 1920s.

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Family

Adopted man does DNA test and finds biological mom in a very familiar place

They had interacted in the past and had no idea they were related.

via ABC 7/YouTube

Lenore LIndsey and Vamarr Hunter.

At the age of 35, Vamarr Hunter, now 50, learned that he was put up for adoption as a newborn. Two years ago, he saw a television show about genealogy and did a DNA test to try and find his biological family.

The genealogist quickly determined that Lenore Lindsey, 67, owner of “Give Me Some Sugah” Bakery in South Shore in Chicago, was Hunter’s mother, so she gave her Hunter’s number. Lindsey had given him up for adoption when she was 17 years old and she was hesitant about contacting him.

“I was on the phone talking to my friend when a call came through from the bakery. I was like, ‘Why is Give Me Some Sugah’ calling me?’” Hunter told the Washington Post about when he got the call from Lindsey in the spring of 2022.

The incredible thing was that Hunter lived near the bakery and visited it weekly. “We had an immediate connection. All the pieces had fallen into place,” Lindsey said.

- YouTubewww.youtube.com

The life-changing news came after a recent breast cancer surgery and Lindsey was preparing to undergo chemotherapy. Hunter immediately started calling her “mother” or “ma” and went with her to chemotherapy appointments. While Lindsey recovered, Hunter stepped in, managing the bakery. After Lindsey suffered a stroke, he quit his job to run it full-time.

After retiring from her career as an accountant in 2008, Lindsey opened “Give Me Some Sugah” to provide a positive place for people in the community to relax and enjoy sweet treats. “I just wanted to have a nice little neighborhood place where people didn’t have to be served through bulletproof glass, and they could be treated like people,” she told the Chicago Sun-Times.



By reconnecting with his mother, Hunter met a host of new relatives, and Lindsey became a grandmother to Hunter's 4 kids.

Lindsey has a daughter named Rachel, 40, who believes Hunter fits perfectly into the family. “He talks like he was raised in the house with us,” Lindsey said, according to the New York Post. “We’re both the same.”

The reconnection between mother and child must have brought a lot of closure to Lindsey, who never saw his face when he was born out of fear she’d become too attached. But her mother got a good look at him, saying that he was “beautiful.”

Hunter doesn’t have any regrets about how things went in the past. He’s just happy to be part of a family where he feels he belongs. “You can't make up for time and days gone by. What you can do is properly utilize the time that you have,” he said, according to People.

Having a new son has been an unexpected blessing in Lindsey’s golden years. “It's the most joyful story and time in my life," Lindsey said. “In my senior years, all of this has come together.”

Lindsey is proud of the man Hunter has become. “He really is such a good soul. He has just no animosity [about being given up for adoption]. I’m sure he’s adding years to my life because I just got this sense of peace. It’s like your life came full circle,” said Lindsey.

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Pop Culture

Brit shares the one-word 'dead giveaway' that American actors are doing an English accent

There's one word they never get right.

via Warner Bros Discovery

Peter Dinklage on "Game of Thrones?

When it comes to actors doing accents across the pond, some Americans are known for their great British accents, such as Natalie Portman ("The Other Boleyn Girl"), Robert Downey, Jr. ("Sherlock Homes"), and Meryl Streep ("The Iron Lady").

Some have taken a lot of heat for their cartoonish or just plain weird-sounding British accents, Dick Van Dyke ("Mary Poppins"), Kevin Costner ("Robin Hood: Prince of Thieves") and Keanu Reeves ("Bram Stoker's Dracula").

Some actors, such as Tom Hardy (“The Drop”) and Hugh Laurie (“House”), have American accents so good that people have no idea they are British.

Benedict Townsend, a London-based comedian and host of the “Scroll Deep” podcast, says there is one word that American actors playing characters with a British accent never get right. And no, it’s not the word “Schedule,” which British people pronounce the entire first 3 letters, and Americans boil down to 2. And it’s not “aluminum,” which British and American people seem to pronounce every stinking letter differently.

@benedicttown

The one word American actors aways get wrong when doing an English accent

What word do American actors always get wrong when they do British accents?

“There is one word that is a dead giveaway that an English character in a movie or a TV show is being played by an American. One word that always trips them up. And once you notice it, you can't stop noticing it,” Townsend says. “You would see this lot in ‘Game of Thrones’ and the word that would always trip them up was ‘daughter.’”

Townsend adds that when British people say “daughter,” they pronounce it like the word “door” or “door-tah.” Meanwhile, Americans, even when they are putting on a British accent, say it like “dah-ter.”

“So top tip if you are an actor trying to do an English accent, daughter like a door. Like you're opening a door,” Townsend says.



What word do British actors always get wrong when doing American accents?

Some American commenters returned the favor by sharing the word that British actors never get right when using American accents: “Anything.”

"I can always tell a Brit playing an American by the word anything. An American would say en-ee-thing. Brits say it ena-thing,” Dreaming_of_Gaea wrote. "The dead giveaway for English people playing Americans: ‘Anything.’ Brits always say ‘EH-nuh-thin,’” marliemagill added.

"I can always tell an actor is English playing an American when they say ‘anything.’ English people always say it like ‘enny-thin,’” mkmason wrote.



What is the cot-caught merger?

One commenter noted that the problem goes back to the cot-caught merger, when Americans in the western US and Canadians began to merge different sounds into one. People on the East Coast and in Britain pronounce them as different sounds.

“Depending on where you live, you might be thinking one of two things right now: Of course, ‘cot’ and ‘caught’ sound exactly the same! or There’s no way that ‘cot’ and ‘caught’ sound the same!” Laura McGrath writes at DoYouReadMe. “As a result, although the different spellings remain, the vowel sounds in the words cot/caught, nod/gnawed, stock/stalk are identical for some English speakers and not for others.”

American actors owe Townsend a debt of gratitude for pointing out the one thing that even the best can’t seem to get right. He should also give the commenters a tip of the cap for sharing the big word that British people have trouble with when doing an American accent. Now, if we could just get through to Ewan McGregor and tell him that even though he is fantastic in so many films, his American accent still needs a lot of work.

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